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Patients Against Lymphoma

 

Support & Survivorship

Last update: 03/24/2014

TOPICS
Alerts / Keeping Safe
| PsychosocialDoctorsFinancial and Career |  Insurance Help | Drugs |
Immunization Guide | Treatment Support & Tips  | Patient-to-Patient (right column)

In the News:

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CARING CONNECTIONS - NHPCO
Download Your State's Advance Directives -  (scroll down to states) http://bit.ly/1a50vdr

Alerts and Keeping Safe

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Guide on Counterfeit Drugs 

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Keeping Safe minimize your risk from medical errors

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Supplement Alerts 


Psychosocial and Physical Effects

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Living Well with Lymphoma
Dealing with Anxiety and Depression
(Improving Quality of Life) 
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Books that provide guidance
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Caregiver Stress & Caregiver Tips
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Talking with your child about your cancer

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Complementary practices
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Exercise & Diet  | Yoga
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Encouragement 
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Fatigue
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Fertility / sexual support and reports
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Health Care Proxy
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Hospice
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Pain Management 
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Palliative Care
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Parents:  Talking with your child about your cancer
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Patient Stories
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Sexual / Fertility / Reproductive side effects

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Support Groups  | "Buddies" Programs
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Support Organizations
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Survivorship Care Plan | Online Tool Powered by Penn Medicine's OncoLink LIVE-STRONG

IOM recommended - this help to make a "survivorship care plan" that is individualized based on the answers you provide in a brief questionnaire.
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Survivorship: Dr. Wendy Harpham

Doctors

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Communicating with your doctor  
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Locating Doctors  & Cancer Centers
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Preparing for doctor visits | Bring List PDF
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Questions for your doctor - checklist 
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NEW Survivorship Care Plan - do you have one?

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Your Medical Rights
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Your Test Results and HIPAA - rules and tips

Drug payment resources
 

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Drug Payment Support

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Co-pay resources

Financial, Career, Insurance & Legal support

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Careers and workplace discrimination 
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Disparities in Health Care
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Financial support
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Drug Payment Support
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Insurance
 

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Help with drug payment
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Family and Medical Leave Act (fixed)
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Veteran resources

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Insurance

What if I have no insurance?


Healthcare.gov - State by state health insurance options for people with pre-existing conditions
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The Legal Clinic for the Disabled
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Managed Care
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Travel help 

Immunization Guide
 

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Re-immunization after SCT

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Institute for Quality and Efficiency in Health Care
Fact sheet: The common cold ncbi.nlm.nih.gov
 

Treatment Support
 

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Asking questions, with checklists
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Diet and Exercise
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Monitoring Indolent Lymphoma
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Recovery from Treatment and
Managing the Late Effects
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Risks and Benefits / Secondary Risks 
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To "port or not to port"
and other drug administration questions
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Patient Stories
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Sexual / reproductive Issues

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Travel and Lodging for Treatment
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Treatment Support and Tips
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Diet for Immune suppressed

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Diet to control nausea
 

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Treatment decisions - factors that can influence treatment goal, type, and timing and
 
         
Considerations at relapse

 
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Treatment Tips
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Treatment Support page
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for Blood Draws and IVs
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for CHOP+R Treatment
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for Rituxan ... a checklist
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Treatment diary

Patient-to-Patient Support
& Patient Stories

Art 
Images and poems created by patients and caregivers that portray the experience of living with lymphoma. 
 

Books 
Patient-recommended books on living with lymphoma and its treatment 

Caregiver Stress
Help with identifying and relieving caregiver stress.

Caregiver Tips

"Buddies" Programs - peer-to-peer support with guidance on 
How to Help a Friend

Doctor-Patient Relationships 
Guidance on how to communicate with your doctor, and how to create a support team to optimize your care. 

Encouragement
Reasons to be optimistic; guidance on the shock of diagnosis

Guidelines at Diagnosis
Checklist to help when you are first diagnosed. 

Life After Cancer Journal  

Create Your free Lotsa Helping Hands community

Patient Stories
Inspirational, patient-to-patient guidance; Memorials

Printable Guides & Tools  
Free printable brochures, checklists, spreadsheet to help patients obtain optimal care. 

Support Groups - This page lists a variety of online support groups. It also allows you to change some subscription settings, such as no-email or daily digest. 

Tips for Coping with CHOP+R treatment

Tips for "Skick"y Situations Blood Draws and IVs: Tips for Minimizing Anxiety and Pain
 

 

Survivorship Resources

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Survivorship Care Plan - an online tool Powered by Penn Medicine's OncoLink LIVESTRONG  
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Healthcare.gov: State by state health insurance options for people with pre-existing conditions

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Cancernet: Cancer Rehabilitation

 

The patient-to-patient support section relies on the input of lay persons, primarily.

We seek reputable sources of information.
As with all material on this site, please consider it a starting point for
discussions with your physician.  We welcome input from patients, caregivers and medical professionals. 

- Karl Schwartz 

 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright 2004,  All Rights Reserved.