Patient TOOLS AND TIPS
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MEDICATIONS, BLOOD DRAWS, LABS
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About Blood Tests
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Web
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For patients and caregivers
Basics about blood tests: why they are done; different types
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Blood draws *
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For patients and caregivers
Tips for minimizing pain. A patient's guide to minimizing discomfort from IV and injections Updated August 2007 |
Lab Tracker *
To Download:
Right-click
link on left,
Select Save Target As
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Excel
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For patients and caregivers
Lets you record, compare, and chart labs results. Requires Microsoft Excel version 10 |
Keeping Your Family Safe From Medical Errors *
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PDF
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For patients and caregivers
A patient's guide to minimizing risk from medical errors. Updated August 2007
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Medication
Checklist *
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PDF
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For patients and caregivers
Helps you to organize your medications - includes tips for avoiding medication errors.
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Medication and Consult Organizer *
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PDF
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Print, then fill in. Provide a copy for each physician to assist in your consults. Includes tips on how to avoid common medical errors |
Peripheral Blood Reference Range Chart (CBC) *
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PDF
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For patients and caregivers
A two-page chart to help you understand the meaning of blood count results. Includes age- and gender-specific ranges of normal. |
DOCTOR VISITS
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Decision Aids
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Preparing for
Doctor Visits *
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PDF
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For patients and caregivers
What to bring, and how to prepare for doctor visits. How to ask for and receive help from care managers and obtain special services. Version update Aug 30, 2005 |
Questions for Doctors, a checklist *
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PDF
Web
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For patients and caregivers
Guidance on communicating with your doctor, and a checklist of questions to ask. Categories: General, Treatment-related, Side Effect-Related, and Test-Related.
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Big Picture Questions*
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PDF
Web
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For patients and caregivers
Helps to understand which approaches are appropriate based on your type of lymphoma, clinical circumstances, and your personal preferences |
Preparation and Tips
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Preparing for Doctor Visits *
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PDF
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For patients and caregivers
General Guidance and Related Resources |
Optimizing Doctor Visits *
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PDF
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For patients and caregivers
Being an active partner starts with trusting that our questions are valid – they are!
Be concise, honest, respectful, and prepared |
Health Insurance
Correspondence Log *
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PDF
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For anyone to view, print and distribute
Use to help prepare for and log correspondences with health care providers and insurance carriers. Provides tips for filing bills and EOBs.
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Treatment
Appointment Diary *
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Web
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For patients and caregivers
Helps keep track of appointments and questions |
TIPS: Preparing for Treatment, a checklist *
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PDF
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For patients and caregivers
Guidance on how to prepare and get through treatment. |
Symptoms reporting, a CONCISE one page checklist *
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PDF
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For patients and caregivers
To concise overview on reporting symptoms
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Symptoms reporting, a two page guide to help you report to your doctor *
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PDF
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For patients and caregivers
A more detailed guide to aid in reporting new symptoms by phone, in consults, and to fax symptoms
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Treatment History Form *
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PDF
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For patients and caregivers
Records treatment history: types, duration, months to next treatment, and months to next treatment of kind. Helps you & your doctor to see trends. Updated 11/27/2003. |
Treatment-specific Information
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Rituxan
Checklist *
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Web
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For patients and caregivers
What to expect, bring, reactions to be watchful for, etc. |
Radioimmunotherapy -
When to Consider *
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PDF
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For patients and caregivers
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006. |
CLINICAL TRIALS
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CLINICAL TRIAL SURVEY
Ask your Oncologist to complete and mail in
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For patients and caregivers to print out and give to their doctors
To identify obstacles to enrolling patients in clinical trials. |
Clinical Trials - Questions that can only be answered by trials *
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PDF
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For patients, caregivers and investigators
Progress depends on the completion of studies that answer important clinical questions. |
Clinical Trials - when to Consider *
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PDF
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Based on our unique clinical circumstances.
When trial participation can also make sense as a treatment decision.
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When Should I
Consider a Clinical Trial? *
Questions to ask
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PDF
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For patients and caregivers
Includes a checklist of questions to ask your doctor or the study investigator. Includes guidelines of when a study might be most appropriate. Includes step-by-step help on how to locate a clinical trial for lymphoma. |
Clinical Trials * Locating for Lymphoma
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Find trials:
by Agent
by Type of Lymphoma & Treatment Status
Our Picks
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For patients, caregivers, and healthcare providers
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EVALUATING MEDICAL CLAIMS AND EVIDENCE
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Red Flags and Free Speech *
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PDF
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For patients and caregivers
How to recognize strong, plausible, and questionable information about cancer treatments. |
Is the Medical Claim
Reputable? *
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PDF
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For patients and caregivers
Checklist for judging the credibility of online information
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Testimonials
- problems with *
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PDF
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For patients and caregivers
Provides information about why testimonials cannot be considered evidence. Updated 09/15/2006. |
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Lymphoma Awareness *
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PDF
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For anyone to view, print and distribute
Q&A: What's lymphoma? What's cancer? Types? Incidence and mortality? Symptoms? Treatments? Incidence? Famous people with? Updated September 2007 |
Lymphoma
simplified *
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PDF
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For anyone to view, print and distribute
Describes lymphoma in a comprehensive way, but using lay terminology.
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What's
Lymphoma? *
How it arises from lymphocytes
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PDF
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For patients, caregivers and the general public
Includes symptoms, areas of presentation, and statistics. Includes illustrations of white blood cells, lymphocytes, and how a cancer begins. |
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Harmonizing Research and Treatment Goals
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Color PDF
B&W PDF
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For Drug sponsors and clinical investigators
Describes our perspectives on the design of clinical trials - specific to immune-based therapies |
Increasing Participation
in Clinical Trials
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PDF
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For Drug sponsors, and clinical investigators
Patient perspectives on clinical trial design. Draft: Added April 19, 2004 |
Clinical Trials - The Urgent Need to Increase Participation
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PDF
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For public and drug sponsors and investigators
There is an increasing number of investigational agents for lymphomas and a limited patient pool, approximately 5% of available patients. Thus, identifying and addressing obstacles to study enrollment is vital to making progress. |
Modernizing Cancer Research
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PDF
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For anyone to view, print and distribute
Provides a schematic of the National Biospecimen Network; and the rational for why it's urgently needed.
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Strategies for Finding and Evaluating Medical Information
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PDF
Web
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For patients, caregivers, and research advocates
Web: compiled resources
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Questions that Can Be Only Answered by Clinical Trials
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PDF
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For patients, caregivers, research advocates, and healthcare providers
Brochure: Our goal is to show patients that participation is essential to progress - to answering questions we have today. |
Presentation to Patient Representatives:
Keeping an Open Mind - Close Calls
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PDF
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For research advocates
Preparing for ODAC meetings - keeping an open mind
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Interest, attitudes, and participation in clinical trials among lymphoma patients with online access
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Web
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For research advocates and clinical researchers
Our published study - ASCO 2009:
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Optimizing
Patient-Physician Consults
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PDF
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For Healthcare providers
Patient perspectives on how doctors and staff can improve the consult experience for patients. |
| We encourage visitors to print or download the items within. |
