Ask Question
Sign Guest book

 
About Lymphoma
| Advocacy | Art | CAM & Life Style | Clinical trials | Docs & Centers | Guidelines at Diagnosis | How to Help | Side Effects | Support | Symptoms  | Tests | Treatments | Types of Lymphoma


Experts

Patients Against Lymphoma

 

Support > Preparing for Doctor Visits

Last update: 07/16/2010

TOPICS
 
Brochures and Forms
| Care Managers
  
Services to Ask About
Doctor Visits - A Checklist to Help You Prepare

Optimizing Doctor Visits

Beautifully written. I expect this piece will resonate with patients and experts alike.

Musings of a Distractible Mind: Thoughts of a moderately strange (yet not harmful) primary care physician.

A Letter to Patients With Chronic Disease http://bit.ly/b68MKj  

Objectives: 

  1. Help your doctor to efficiently determine your medical needs and most appropriate treatment plan

  2. Timely access to medical care and related services

  3. Foster mutually respectful and supportive relationship

Basics:

bullet
Concise Bring List  PDF | Brochure
bullet
Have a  trusted friend or love one sit in on the consult

One of the best ways to improve the quality of your consult
bullet
Prepare materials and concise background  PDF
bullet
Report symptoms / side effects accurately, honestly  PDF 
bullet
Prepare your questions in advance in writing  PDF

Prepare and be concise to foster a positive and productive relationship. 
Be respectful of your doctors time, mindful that he or she has other patients, 
but make sure your important questions are answered.

Resources to optimize consults with your doctor:

Essentials:

bullet
Preparing for Doctor Visits   
bullet
What to bring PDF 
bullet
Concise Bring List
 
What to bring and how to approach a consult
 
bullet
Questions for your Doctor  Web | PDF  
 
A checklist to help you prepare questions for your doctor.
bullet
Is a clinical trial  appropriate for me? PDF  Web

 A treatment option to discuss with your doctor
bullet
When to Consider Radioimmunotherapy?  PDF  
 
A lymphoma treatment option to discuss with your doctor
bullet
Symptoms Checklist  PDF  

A checklist to help report new symptoms to your doctor
bullet
Medication Checklist by PAL PDF
 
Help to schedule your medications, but also discuss possible interactions
when prescribed by multiple providers.
bullet
Patient recommended oncologists Web 

Clinical Trials:

bullet
Print and give survey to your oncologist  PDF

A way to identify obstacles to clinical trial referrals, AND 
start the conversation about clinical trials.

Tips, Tools and Related Articles

bullet
Blood draws PDF 

Tips for minimizing pain and complications from blood draws
bullet
Keeping Safe PDF 

 A patient’s guide to minimizing risk of harm from medical errors
bullet
Treatment Schedule Diary  PAL web 

 includes common questions to ask your doctor
bullet
Treatment History Diary PDF  
bullet
Treatment History Calculator - Excel version 2000 | Excel version 5.0
bullet
The Smart Patient: How to Get the Best Care NPR.org 

"From how they talk to doctors to what they read, patients can strongly influence the level of care they receive."
bullet
Discussing CAM with your doctor scienceblogs.com:80/terrasig 
bullet

Musings of a Distractible Mind:
Thoughts of a moderately strange (yet not harmful) primary care physician.

A Letter to Patients With Chronic Disease http://bit.ly/b68MKj  
bullet
Doctor-patient relationships Commentary
 
Guidance on how to communicate with your doctor, and how to create a support team
to optimize your care.
  

TOPIC SEARCH:  Patient/doctor relationship - MedscapeNurses perspectives PubMed
Shared decision-making - PubMed
  | Web

Return to top
 

Care Managers

You *may* be able to get the help of a care manager or care "navigator" from the place you get treatment.

What you might ask:  I'm feeling a bit overwhelmed right now. Can you provide me with the names of care managers who can help me to organize what I need to know and do?

bullet

Nurse specializing in cancer or other areas ("nurse navigators"); 

bullet

Social worker; 

bullet

Health care advocate;

bullet

Family member or friend that you trust;

bullet

Large facilities usually have a full-time care manager.
 
OR

Contact your local or virtual (online) non-profit organization - ACC PAL, LLS, LRF 

Return to top

The Role of Care Managers

What you might ask:  I'm feeling overwhelmed right now. Can you provide me with contact information for care managers who can help me to organize what I need to know and do?

Care managers help you make sense of what the doctor tells you. It's especially important to obtain help from a care manager if you have special needs.  

Care Managers can help you to:

bullet

Organize your information and point you to resources;

bullet

Find out what types of treatments and tests your insurance company pays for;

bullet

Make sure your doctors have everything they need before they meet with you, including your medical files, test results, treatment history files;

bullet

Understand what your doctor has explained to you about your diagnosis and treatment plan; 

bullet

Answer any questions you might have after you leave the doctor's office. 

(Adapted from guidance published by the Oncology Nursing Society) 
 

Usually, one visit with the doctor is not enough, especially if you're upset. You need to fully understand and remember all the important and complicated information you'll hear about your illness and treatment. 
Return to top
 

Other Services

What you might ask:   

I'm in need of special assistance because of one or more of the following: 
anxiety, depression, confusion, fatigue, finances, pain ...  

... Can you please provide me with contact information for special services to help me adjust to or overcome this problem?

bullet Mental health professionals (psychologists, or psychiatrists) - can help you adjust to the stress of living with cancer. Also see Support for Anxiety and Depression page.
 
bullet Social workers - can help you find the resources you need, and provide direct support.
 
bullet Support groups - can help by providing encouragement, and helping you to find resources.
Also see Support Groups for how to join online groups.
 
bullet Pain specialists - can help you to improve your quality of life, and address problems related to your illness and treatment.  Also see Talking About Pain and Pain Support.
 
bullet Physical therapists -  can help you to address problems with mobility.
 
bullet Nutrition experts - can help you to improve your quality of life, optimize your health, and reduce some risks related to diet and treatment.
Return to top
 

Doctor Visits - A Checklist to Help You Prepare

Begin your consult with:    

Is this a good time to ask questions, doctor?

Important: Treatment and initial consults should not be rushed. Ask your doctor to schedule a time that allows for a thorough discussion of all appropriate options.  

bullet

Ask a trusted friend or family member to come with you.
Select someone who has good listening skills and some medical or support 
background if possible to each visit.

bullet

A referral from your primary care doctor when seeing a specialist

bullet

Authorization from your insurance company when special services or tests, or treatments will be administered.

bullet

Insurance cards - bring all to first consult;

bullet

Emergency contacts - bring a list of names, addresses, and telephone numbers to first consult;

bullet

Family doctor and local pharmacy - bring a list of names and contact information to first consult;

bullet

Pathology report and slides - bring with you to first consult;
Bringing the slides is especially important when consulting an outside expert for the first time

bullet

Medical and treatment history - bring a summary to all consults. 

bullet

A complete list of medications you are taking, including the dose and schedule;

bullet

Bring a list of the dietary supplements and herbs you may be taking. 

bullet

Bring a list of  dates, locations, and results of all doctor visits, tests, or x-rays

bullet

Bring a copy of your recent radiology reports, and the film from the last image test if available. 

bullet

A list of all your questions.  

See Questions for Your Doctor 

NOTE: A new federal law, the Health Insurance Portability and Accountability Act (HIPAA), 
could make it more difficult for doctors to get these records from other doctors' offices. 

Return to top
 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright © 2004,  All Rights Reserved.