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Patients Against Lymphoma

 

Clinical Trial Search Tools

Last update: 12/05/2014

 

Focus on Clinical Trials 

Review: 7 Reasons to Consider Trials   | How to Ask About Trials

Call NCI | Tools  | Related Resources  | Trial Survey

Call National Cancer Institute toll-free: 1-800-4-CANCER

TTY: 1-800-332-8615  | 1-800-332-8615

By Sponsors  CALG-B (ALLIANCE) | NCTN (all cooperative groups)

Search Tools:  See also Focus on Trials!

See Phase III for Lymphoma OR CLL 
comparing and advancing the standard of care
 
See
Gene profiling- / biomarker-based trials for 
Follicular | CLL | DLBCL | HodgkinsMCL | T-cell | Unspecified
 
Search for trials using TrialCheck.org  
(easy to use - by Coalition of Cancer Cooperative Groups)

Let us Help You Find Trials email a PAL

See NCI-sponsored trials for Lymphoma  Cancer.gov 

See International Clinical Trial Search by WHO

Other Ways to Locate Trials (such as by grade) 

Expanded Access Trials

Includes filters for age, fatigue, first-line, grade,
phase, stage, and refractory

 

  PAL is dependent of public-only support for funding.  Please lend a hand.

Donate Your Used Vehicle or Make an Email-Pledge or Donate by Mail or

Donate online with a credit card.  It's easy, safe and secure: 

Patients Against Lymphoma is a 501(3)(c) non profit organization  
Your donation is tax deductible

Looking on a forum I frequent, I found a post by Patients Against Lymphoma. It listed many clinical trials around the country. One was a trial at U of M only 50 miles from me. I qualified, and that trial gave me the hope of a better outcome that I was looking for."

~ Tom (WebMagic forum)

Essentials for Patients:

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How To Inquire About Clinical Trials

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7 Reasons to Consider Clinical Trials based on our clinical circumstances

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Questions for Your Doctor about Trials

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A way to start the conversation about trials (bring our survey to your next consult)  

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Our Travel and Lodging Resource page

Background for patients:

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Clinical Questions that Can Be Only Answered by Clinical Trials

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Important points about side effects

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Conflict of Interest in Medical Decision-making

Key questions for patients:

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Big Picture Questions

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What is the natural history of my type of lymphoma, and how effective is the standard of care? 

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What are my unique risk factors?

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What clinical trials are appropriate as therapy for my circumstance - which seem to compare well with the standard of care?

Research Advocacy

Our projects:

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Our Clinical Trial Surveys and Advocacy Projects

Oncologist survey (open)
 
Patient survey (complete) Report and JCO abstract

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Proposal for ClinicalTrials.gov (open) 

Background on urgent need to improve accrual

In an era of increasing opportunities to improve outcomes arising from insights into the biology of lymphoma there is a more urgent need to improve accrual!
 

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The Terrible impact of low enrollment on clinical research 

And related articles on the crisis in clinical research

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Related Resources

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About PAL's Tools to Locate Lymphoma and CLL Trials

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Expanded Access (Compassionate Use)
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Other Trial Resources | PDQ | Travel Help | Informed Consent
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NCI: Which Study Results Are the Most Helpful in Making Cancer Care Decisions?
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Accelerated Approval (AA) for Oncology Drug Minutes of  Advisory Meeting:
 http://1.usa.gov/dVkY23  (406 pages.)
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Please take our VERY short Trial of Interest Survey for untreated Follicular Lymphoma
For patients, caregivers, or oncologists!
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NCI Taking Part in Cancer Treatment Research Studies  Cancer.gov | PDF
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Oncologists Divided Over Experimental Treatments  Medscape (free login req.) 
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Results of a survey to help understand why cancer patients choose to enter or not to 
enter cancer clinical trials.  actmagazine 
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Public Registration of Clinical Trials ~ Robert Steinbrook, M.D.  NEJM 2004
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Would a clinical trial be appropriate for me? Questions for your doctor. 
A free printable brochure prepared by Patients Against Lymphoma  PDF 
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How to Use and Conduct More Specific ClinicalTrials.gov Searches
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Protocol registration system (for drug sponsors)  http://prsinfo.clinicaltrials.gov
 

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How to use ClinicalTrials.gov

Following a keyword search or using one of queries:

A list of protocols will appear in a new ClinicalTrials.gov window.

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TIP:  Click the Results on Map tab to find studies near you.

  1. From the list of studies, click the protocol name to open it.

  2. Review the Inclusion and Exclusion information to see if you are eligible to participate.

  3. The protocol will often provide contact information. 

    Feel free to contact investigators directly, but we feel that it's best to have the investigator and
    your treating oncologist discuss the potential of the study to meet your clinical needs -- relative to other options.

  4. If feasible:  Consult an independent Expert for the most objective information about what trials may be appropriate for you.

  5. You can come back and check for updates by clicking the same links again to re-execute the queries.
     
    Need a more specific search?  Click here to request a personalized Clinical Trials search. 

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Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright 2004,  All Rights Reserved.