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Patients Against Lymphoma

 

Advocacy >  Trial Talk

Our list of lymphoma and CLL specialists that patients can consult
for a second opinion and to ask about trials

Last update: 10/20/2016


Specialists to Consult in Name Order / In Region order

About TRIAL TALK  |  Dr. Invite  | Responses by specialists to date  | Patient usage feedback

TRIAL TALK
A way for patients to consult lymphoma and CLL specialists
about clinical trials ... as part of a second opinion

 

Objective:  To increase how often patients consider trials with the help of specialists who are knowledgeable about trials -- who will have first-hand information about the patient's clinical status, needs, and preferences.

Method: to provide a list of specialists by Name and Region order who agree to discuss trials as part of a second opinion.  The list will contain a link to the specialist's CV (if available on the web), their institution, region, TRIAL TALK confirmation, specialty, and phone contact.   Specialists from regions outside the US are also welcome.

Rationale:  Making additional progress against lymphoma requires an increase in the participate rate of patients with the disease.   Reflecting the promise for progress,  there are 1,480 open trials seeking lymphoma and CLL patients in order to test new approaches to treatment.  The participation rate in trials must keep pace with emerging insights, promising new study drugs, and related ideas.  

 

Comment: Trials for investigational agents of a different class are especially important to consider when your treatment history has been intense and more of same would be higher risk because of cumulative toxicities, or when the lymphoma has developed resistance to standard therapies. 

See for our list of 104 Specialists to Consult in Name Order / In Region order

+++++
Dear Doctor,
 Please click here to email your agreement to welcome questions about clinical trials from patients .... including trials that are running outside of your institution that the patient inquires about specifically.

PAL's website Lymphomation.org  is widely used by the patient and research community.  Please note the high number of unique visitors  per month to lymphomation.org - a screen capture from the web hosting service:



Responses by specialists to date:

bullet
104 specialists are in our list.
bullet
41 of 41 have confirmed Trial Talk (100%) and many have endorsed the purpose and need for the project.
bullet
63 responses are pending -- of these we anticipate most if not all will confirm -
will discuss trials that the patient brings to their attentio



In name order | In region order

click to be counted ... to let us know that you have used our specialist list
to arrange for a second opinion.  >

Last Name, First Name

Click the specialist's name to  open a webpage that provides more information about the provider.
Institution/Affiliation Region State Confirmed: Trial Talk  Area
(focus)

Lymphoma =
NHL, HL, &
 often CLL
Phone
Abramson, Jeremy Mass General NE MA, Boston Pending Lymphoma (CLL) 800-711-4644
Advani, Ranjana Stanford University Medical Center W CA Pending Lymphoma (650) 498-6000
Andreadis, Charalambos UCSF W CA YES Lymphoma (415) 353-2421
(415) 353-2051
Ansell, Steve Mayo Clinic in Minnesota MW MN, Rochester YES Lymphoma (507) 284 0923
Armitage, James  University of Nebraska Medical Center MW NE, Omaha Pending Lymphoma 402-559-7290
Avigan, David  Dana Farber, Beth Israel Deaconess Medical Center NE MA, Boston Pending Lymphoma (SCT) 617-667-9920
Barr, Paul  University of Rochester Medical Center NE NY, Rochester YES Lymphoma (585) 275-5830
Bartlett, Nancy            W MO, St. Louis Pending Lymphoma 800-600-3606
Beaven, Anne  Duke University S NC, Durham YES Lymphoma 919-684-8964 
Bendandi, Maurizio Wake Forest, Baptist Health
 
NE NC, Winston-Salem YES Lymphoma (vaccine) 336-716-WAKE
Bengston, Elizabeth Dartmouth-Hitchcok Norris Cotton Cancer Cnt NE NH Pending Lymphoma (SCT) (603) 650-5529
Bernstein, Steven University of Rochester Medical Center NE NY, Rochester Pending Lymphoma, (MCL) (585) 275-0784 
Bishop, Michael University of Chicago MW IL, Chicago YES Lymphoma (SCT) 773 702 9297
Blum, Kristie Ohio State University MW OH, Columbus Pending Lymphoma (614) 293-3196
Brown, Jennifer R, MD PhD Dana Farber NE MA, Boston YES CLL/SLL 617-632-5847
Byrd, John  Ohio State University MW OH, Columbus Pending CLL/SLL 614-293-7139
866-627-7616
Castillo, Jorge Dana Farber NE MA, Boston YES Lymphoma (WM) 617-632-2681
Casulo, Carla  University of Rochester Medical Center NE NY, Rochester YES lymphoma  (585) 275-URMC (8762)
 
Chaitra.S.Ujjani Georgetown University NE DC, Washington YES Lymphoma 202-444-1212
Chanan-Khan, Asher  Mayo Clinic S FL, Jacksonville YES Lymphoma, (CLL, WM) 904-953-0853
Cheson, Bruce Lombardi Comprehnsv Cncr Ctr  S DC, Washington YES Lymphoma, CLL 202-444-7932
Connors, Joseph  BC Cancer Agency Canada  Vancouver Pending Lymphoma, (Hodgkin's) 604-877-6000 x2746
Crump, Michael Princess Margaret Cancer Centre Canada    Pending biomarker 416.946.4501 x4567
Densmore, John University of Virginia School of Medicine S VA, Charlottesville Pending Lymphoma 434-982-3390
Devine, Steven Ohio State University NE OH Pending Lymphoma (310) 829-5471
DeVos, Sven  UCLA Jonsson Comprehensive Cancer Center  W CA, Los Angeles YES Lymphoma (310) 829-5471
Diefenbach, Catherine  NYU Langone Medical Center NE NY, NY Pending Lymphoma (CLL) 212-731-5670
Dreyling, Martin  University Hospital /LMU, Marchioninistr (Munich, Germany) Germany Munich, Bavaria Pending Lymphoma, (MCL)  
Evens, Andrew  Tufts University School of Medicine NE MA, Boston Pending Lymphoma, Hodgkin's disease 617-636-6227
Fisher, Richard  Fox Chase NE PA, Phil Pending Lymphoma 888-FOX-CHASE
Flinn, Ian  Sarah Cannon (Nashville)-  S TN Pending Lymphoma (615) 986-7600 
Flowers, Christopher  Emory University S GA, Atlanta Pending Lymphoma (SCT) (404) 778-1900
Foss, Francine  Yale Cancer Center NE CT, New Haven Pending Lymphoma
 (t-cell)
(203) 200-4363
Fowler, Nathan The University of Texas MD Anderson Cancer Center S TX, Houston YES Lymphoma (immunotherapy) 713-792-2860
 
Frank, Richard  The Whittingham Cancer Center NE CT, Norwalk Pending Lymphoma 203-845-4811
Friedberg, Jonathan University of Rochester Medical Center NE NY, Rochester YES Lymphoma 585) 275-URMC (8762)
Furman, Richard Weill Cornell Medical College NE NY YES Lymphoma (CLL,WM) (646) 962-2064
Gaensler, Karin  Division of Hematology/Oncology W CA, San Francisco Pending Lymphoma (415) 353-2421
Gaur, Rakesh Saint Luke's Hospital (NCORP) MW MO, Kansas City YES Lymphoma  
Gopal, Ajay Seattle Cancer Care Alliance, University of Washington School of Medicine; Fred Hutchinson Cancer Research Center W WA, Seattle YES Lymphoma (855) 557-0555
Gordon, Leo  Northwestern University Feinberg School of Medicine MW IL, Chicago YES Lymphoma, follicular 312-695-4546
Goy, Andre  John Theurer Cancer Center at Hackensack University Medical Center NE NJ, Hackensack Pending Lymphoma (551) 996-3559
Gregory, Stephanie Rush University Medical Center MW IL Pending Lymphoma (312) 563-2320
Hochberg, Ephraim Mass General NE MA, Boston Pending Lymphoma 617-724-4000
Holman,  Peter R.  University of California, San Diego W CA, La Jolla Pending Lymphoms (858) 657-6790
Horwitz, Steven Memorial Sloan-Kettering Cancer Center NE NY, NY YES lymphoma (t-cell) 212-639-3045
800-525-2225
Jacobsen, Eric  Dana Farber NE MA, Boston Pending Lymphoma 617-632-6246 
Jaslowski, Anthony Greenbay Oncology MW WI, Green Bay Pending Lymphoma 866) 884-3135
Joyce, Robin  Beth Israel Deaconess Medical Center NE MA, Boston Pending Lymphoma 617-667-9920
June, Carl Perelman School of Medicine, University of Penn NE PA, Philadelphia Pending Lymphoma
 (CART 19)
 
Kahl, Brad Washington University  (new) MW MO,  St. Louis  YES Lymphoma 1-866- 867-3627
Kaminski, Mark Univesity of Michigan MW MI, Ann Arbor Pending Lymphoma
(RIT)
734-647-8901
Kaplan, Henry  Swedish Medical Group NW WA, Seattle Pending Lymphoma 855-922-6237
(206) 215-3600 
Khoury, H. Jean Emory University S GA, Atlanta Pending Lymphoma (leukemia, MDS) (404) 778-1900
Kipps, Thomas  University of California, San Diego Dept of Medicine W CA, San Diego Pending CLL (858) 534-5400
Klein, Andreas  Tufts University School of Medicine NE MA, Boston Pending Hematology, Oncology, Internal Medicine (617) 636-5291
Kuruvilla, John   Princess Margaret Cancer Centre  (NCIC) Canada  Ontario, Toronto YES Lymphoma 416 946 2821
LaCasce, Ann Dana Farber Cancer Institute NE MA, Boston YES Lymphoma 617-632-6246
Lamanna, Nicole  NY Presby Columbia NE NY, NY Pending Lymphoma (CLL) (646) 317-5077
Lanasa, Mark  Duke University S NC, Durham Pending   800-266-3853
Laport, Ginna Stanford University Medical Center W CA, Stanford Pending Lymphoma  650 498-6000
Leonard, John Weill Cornell Medical College NE NY, NY YES Lymphoma (646) 962-2068
Link, Brian University of Iowa Hospitals and Clinics MW IA, Iowa City Pending Lymphoma 800-777-8442
Lossos, Izidore  U. Miami S FL, Miami Pending Lymphoma 877-243-1056
Maddocks, Kami The James, Ohio State University MW OH, Columbus YES Lymphoma 800-293-5066
Maloney, David Fred Hutchinson Cancer Research Center;Seattle Cancer Care Alliance W WA, Seattle Pending Lymphoma (855) 557-0555
Martin, Peter  Weill Cornell Medical College NE NY, NY YES Lymphoma (646) 962-2064
Mato, Anthony  Abramson Cancer Center
University of Penn
NE PA Pending Lymphoma 215-615-3251
Millenson, Michael Fox Chase NE PA YES Lymphoma 888-FOX-CHASE
Moskowit, Craig  Memorial Sloan-Kettering Cancer Center NE NY, NY YES Lymphoma 646-497-9137
Mussetti, Albert Clinical Research fellow at Adult Stem Cell Transplant Service, Memorial Sloan Kettering Cancer Cente NE NY, NY YES Lymphoma  
Nichols, Craig Viriginia Mason Medical Center W WA Pending Lymphoma  (888) 862-2737
Nowakowski, Greg  Mayo Clinic MW Minnesota, Rochester YES Lymphoma 800-446-2279
Noy, Ariela Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma
(AID-associated)
646-497-9137 
O'Connor, Owen Irving Cancer Research Center, Columbia University Medical Center NE NY, NY Pending lymphoma
(t-cell)
(212) 326-5720
Pagel, John  Swedish (Seattle) W WA, Seattle Pending Lymphoma 206-215-3245
Persky, Dan  University of Arizona Cancer Center W AZ,  YES Lymphoma (520) 694-2873
Pinter-Brown, Lauren  UCLA Jonsson Comprehensive Cancer Center W CA, Los Angeles YES lymphoma (310) 829-5471
(888) 662-8252 
Press, Oliver  Fred Hutchinson Cancer Research Center W WA, Seattle Pending Lymphoma (855) 557-0555
Reagan, Patrick University of Rochester Medical Center NE NY, Rochester YES Lymphoma 585) 275-URMC (8762)
Robertson, Michael Indiana University Department of Medicine MW IN, Indianapolis YES Lymphoma (immunotherapy) (317) 948-3126
Rosen, Steven  City of Hope  W CA, Los Angeles YES Lymphoma 800-826-HOPE (4673)
Rosenbaum, Cara University of Chicago MW IL, Chicago Pending Lymphoma 1-855-702-8222
Rubenstein, Martin Southbay Oncology Hematology Partners W CA, Cambell Pending Lymphoma  408-376-2300
Schuster, Steven  Penn Medicine - University of PA NE PA Pending Lymphoma 800-789-PENN (7366)
Sharman, Jeff Willamette Valley Cancer Institute and Research Center NW OR,
Springfield
YES Lymphoma (CLL) 888-384-9822
Sher, Taimur M.D. Mayo Clinic, Florida S FL, Jacksonville YES Lymphoma 904-953-0853 800-446-2279
Shustov, Andrei  Fred Hutchinson Cancer Research Center;Seattle Cancer Care Alliance NW WA, Seattle Pending lymphoma (t-cell) (855) 557-0555
Skikne, Barry  Kansas City? MW   Pending    
Smith, Mitchell  Cleveland Clinic MW OH, Cleveland YES Lymphoma  866.223.8100 
Smith, Sonali University of Chicago Medical Center MW IL, Chicago YES Lymphoma 1-888-824-0200
Spurgeon, Stephen    OHSU Knight Cancer Institute W WA, Seattle Pending Lymphoma  
Straus, David Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma (Hodgkins) 646-497-9137
Sweetenham, John Huntsman Cancer Institute at the University of Utah MW UT, Salt Lake City YES Lymphoma (801) 585-6906
Thompson, Carrie Mayo Clinic MW MN Pending (Young Investigator) 507-538-3270
Vose, Julie  University of Nebraska Medical Center NW NE, Omaha  YES Lymphoma (DLBCL) 681980-7680
Wagner-Johnston, Nina  Johns Hopkins  NE MD, Baltimore YES Lymphoma
(AIDS-related)
410-464-6713
Weiss, Mark Jefferson NE PA, Philadelphia Pending Lymphoma (CLL) (215) 955-8874 
Williams, Michael  University of Virginia School of Medicine S VA, Charlottesville Pending Lymphoma 434-924-9637
Wilson, Wyndham National Cancer Institute S MD, Bethesda Pending Lymphoma 301-435-2415
Witzig, Thomas Mayo Clinic MW MN Pending Lymphoma 507-538-3270
Younes, Anas  Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma
(Hodgkin's disease)
646-497-9137
Zelenetz, Andrew  Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma 646-497-9137 
Zent, Clive University of Rochester NE NY, Rochester Pending Lymphoma  (585) 275-5823

 


Grouped by Region

Specialists in name order

click to be counted ... to let us know that you have used the specialist list
to arrange for a second opinion. >

Last Name, First Name

Click the specialist's name to  open a webpage that provides more information about the provider.
Institution/Affiliation Region State Confirmed: Trial Talk  Area
(focus)

Lymphoma =
NHL, HL, &
 often CLL
Phone
Connors, Joseph  BC Cancer Agency Canada  Vancouver Pending Lymphoma, (Hodgkin's) 604-877-6000 x2746
Crump, Michael Princess Margaret Cancer Centre Canada    Pending biomarker 416.946.4501 x4567
Kuruvilla, John    Princess Margaret Cancer Centre  (NCIC) Canada  Ontario, Toronto YES Lymphoma 416 946 2821
Dreyling, Martin  University Hospital /LMU, Marchioninistr (Munich, Germany) Germany Munich, Bavaria Pending Lymphoma, (MCL)  
Ansell, Steve Mayo Clinic in Minnesota MW MN, Rochester YES Lymphoma (507) 284 0923
Armitage, James  University of Nebraska Medical Center MW NE, Omaha Pending Lymphoma 402-559-7290
Bishop, Michael University of Chicago MW IL, Chicago YES Lymphoma (SCT) 773 702 9297
Blum, Kristie Ohio State University MW OH, Columbus Pending Lymphoma (614) 293-3196
Byrd, John  Ohio State University MW OH, Columbus Pending CLL/SLL 614-293-7139
866-627-7616
Gaur, Rakesh Saint Luke's Hospital (NCORP) MW MO, Kansas City YES Lymphoma  
Gordon, Leo  Northwestern University Feinberg School of Medicine MW IL, Chicago YES Lymphoma, follicular 312-695-4546
Gregory, Stephanie Rush University Medical Center MW IL Pending Lymphoma (312) 563-2320
Jaslowski, Anthony Greenbay Oncology MW WI, Green Bay Pending Lymphoma 866) 884-3135
Kahl, Brad Washington University  (new) MW MO,  St. Louis  YES Lymphoma 1-866- 867-3627
Kaminski, Mark Univesity of Michigan MW MI, Ann Arbor Pending Lymphoma
(RIT)
734-647-8901
Link, Brian University of Iowa Hospitals and Clinics MW IA, Iowa City Pending Lymphoma 800-777-8442
Maddocks, Kami The James, Ohio State University MW OH, Columbus YES Lymphoma 800-293-5066
Nowakowski, Greg  Mayo Clinic MW Minnesota, Rochester YES Lymphoma 800-446-2279
Robertson, Michael Indiana University Department of Medicine MW IN, Indianapolis YES Lymphoma (immunotherapy) (317) 948-3126
Rosenbaum, Cara University of Chicago MW IL, Chicago Pending Lymphoma 1-855-702-8222
Skikne, Barry  Kansas City? MW   Pending    
Smith, Mitchell  Cleveland Clinic MW OH, Cleveland YES Lymphoma  866.223.8100 
Smith, Sonali University of Chicago Medical Center MW IL, Chicago YES Lymphoma 1-888-824-0200
Sweetenham, John Huntsman Cancer Institute at the University of Utah MW UT, Salt Lake City YES Lymphoma (801) 585-6906
Thompson, Carrie Mayo Clinic MW MN Pending (Young Investigator) 507-538-3270
Witzig, Thomas Mayo Clinic MW MN Pending Lymphoma 507-538-3270
Abramson, Jeremy Mass General NE MA, Boston Pending Lymphoma (CLL) 800-711-4644
Avigan, David  Dana Farber, Beth Israel Deaconess Medical Center NE MA, Boston Pending Lymphoma (SCT) 617-667-9920
Barr, Paul  University of Rochester Medical Center NE NY, Rochester YES Lymphoma (585) 275-5830
Bengston, Elizabeth Dartmouth-Hitchcok Norris Cotton Cancer Cnt NE NH Pending Lymphoma (SCT) (603) 650-5529
Bernstein, Steven University of Rochester Medical Center NE NY, Rochester Pending Lymphoma, (MCL) (585) 275-0784 
Brown, Jennifer R, MD PhD Dana Farber NE MA, Boston YES CLL/SLL 617-632-5847
Castillo, Jorge Dana Farber NE MA, Boston YES Lymphoma (WM) 617-632-2681
Casulo, Carla  University of Rochester Medical Center NE NY, Rochester YES lymphoma  (585) 275-URMC (8762)
 
Chaitra.S.Ujjani Georgetown University NE DC, Washington YES Lymphoma 202-444-1212
Devine, Steven Ohio State University NE OH Pending Lymphoma (310) 829-5471
Diefenbach, Catherine  NYU Langone Medical Center NE NY, NY Pending Lymphoma (CLL) 212-731-5670
Evens, Andrew  Tufts University School of Medicine NE MA, Boston Pending Lymphoma, Hodgkin's disease 617-636-6227
Fisher, Richard  Fox Chase NE PA, Phil Pending Lymphoma 888-FOX-CHASE
Foss, Francine  Yale Cancer Center NE CT, New Haven Pending Lymphoma
 (t-cell)
(203) 200-4363
Frank, Richard  The Whittingham Cancer Center NE CT, Norwalk Pending Lymphoma 203-845-4811
Friedberg, Jonathan University of Rochester Medical Center NE NY, Rochester YES Lymphoma 585) 275-URMC (8762)
Furman, Richard Weill Cornell Medical College NE NY YES Lymphoma (CLL,WM) (646) 962-2064
Goy, Andre  John Theurer Cancer Center at Hackensack University Medical Center NE NJ, Hackensack Pending Lymphoma (551) 996-3559
Hochberg, Ephraim Mass General NE MA, Boston Pending Lymphoma 617-724-4000
Horwitz, Steven Memorial Sloan-Kettering Cancer Center NE NY, NY YES lymphoma (t-cell) 212-639-3045
800-525-2225
Jacobsen, Eric  Dana Farber NE MA, Boston Pending Lymphoma 617-632-6246 
Joyce, Robin  Beth Israel Deaconess Medical Center NE MA, Boston Pending Lymphoma 617-667-9920
June, Carl Perelman School of Medicine, University of Penn NE PA, Philadelphia Pending Lymphoma
 (CART 19)
 
Klein, Andreas  Tufts University School of Medicine NE MA, Boston Pending Hematology, Oncology, Internal Medicine (617) 636-5291
LaCasce, Ann Dana Farber Cancer Institute NE MA, Boston YES Lymphoma 617-632-6246
Lamanna, Nicole  NY Presby Columbia NE NY, NY Pending Lymphoma (CLL) (646) 317-5077
Leonard, John Weill Cornell Medical College NE NY, NY YES Lymphoma (646) 962-2068
Martin, Peter  Weill Cornell Medical College NE NY, NY YES Lymphoma (646) 962-2064
Mato, Anthony  Abramson Cancer Center
University of Penn
NE PA Pending Lymphoma 215-615-3251
Millenson, Michael Fox Chase NE PA YES Lymphoma 888-FOX-CHASE
Moskowit, Craig  Memorial Sloan-Kettering Cancer Center NE NY, NY YES Lymphoma 646-497-9137
Mussetti, Albert Clinical Research fellow at Adult Stem Cell Transplant Service, Memorial Sloan Kettering Cancer Cente NE NY, NY YES Lymphoma  
Noy, Ariela Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma
(AID-associated)
646-497-9137 
O'Connor, Owen Irving Cancer Research Center, Columbia University Medical Center NE NY, NY Pending lymphoma
(t-cell)
(212) 326-5720
Reagan, Patrick University of Rochester Medical Center NE NY, Rochester YES Lymphoma 585) 275-URMC (8762)
Schuster, Steven  Penn Medicine - University of PA NE PA Pending Lymphoma 800-789-PENN (7366)
Straus, David Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma (Hodgkins) 646-497-9137
Wagner-Johnston, Nina  Johns Hopkins  NE MD, Baltimore YES Lymphoma
(AIDS-related)
410-464-6713
Weiss, Mark Jefferson NE PA, Philadelphia Pending Lymphoma (CLL) (215) 955-8874 
Younes, Anas  Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma
(Hodgkin's disease)
646-497-9137
Zelenetz, Andrew  Memorial Sloan-Kettering Cancer Center NE NY, NY Pending Lymphoma 646-497-9137 
Zent, Clive University of Rochester NE NY, Rochester Pending Lymphoma  (585) 275-5823
Kaplan, Henry  Swedish Medical Group NW WA, Seattle Pending Lymphoma 855-922-6237
(206) 215-3600 
Sharman, Jeff Willamette Valley Cancer Institute and Research Center NW OR,
Springfield
YES Lymphoma (CLL) 888-384-9822
Shustov, Andrei  Fred Hutchinson Cancer Research Center;Seattle Cancer Care Alliance NW WA, Seattle Pending lymphoma (t-cell) (855) 557-0555
Vose, Julie  University of Nebraska Medical Center NW NE, Omaha  YES Lymphoma (DLBCL) 681980-7680
Beaven, Anne  Duke University S NC, Durham YES Lymphoma 919-684-8964 
Chanan-Khan, Asher  Mayo Clinic S FL, Jacksonville YES Lymphoma, (CLL, WM) 904-953-0853
Cheson, Bruce Lombardi Comprehnsv Cncr Ctr  S DC, Washington YES Lymphoma, CLL 202-444-7932
Densmore, John University of Virginia School of Medicine S VA, Charlottesville Pending Lymphoma 434-982-3390
Flinn, Ian  Sarah Cannon (Nashville)-  S TN Pending Lymphoma (615) 986-7600 
Flowers, Christopher  Emory University S GA, Atlanta Pending Lymphoma (SCT) (404) 778-1900
Fowler, Nathan The University of Texas MD Anderson Cancer Center S TX, Houston YES Lymphoma (immunotherapy) 713-792-2860
 
Khoury, H. Jean Emory University S GA, Atlanta Pending Lymphoma (leukemia, MDS) (404) 778-1900
Bendandi, Maurizio Wake Forest, Baptist Health
 
NE NC, Winston-Salem YES Lymphoma (vaccine) 336-716-WAKE
Lanasa, Mark  Duke University S NC, Durham Pending   800-266-3853
Lossos, Izidore  U. Miami S FL, Miami Pending Lymphoma 877-243-1056
Sher, Taimur M.D. Mayo Clinic, Florida S FL, Jacksonville YES Lymphoma 904-953-0853 800-446-2279
Williams, Michael  University of Virginia School of Medicine S VA, Charlottesville Pending Lymphoma 434-924-9637
Wilson, Wyndham National Cancer Institute S MD, Bethesda Pending Lymphoma 301-435-2415
Advani, Ranjana Stanford University Medical Center W CA Pending Lymphoma (650) 498-6000
Andreadis, Charalambos UCSF W CA YES Lymphoma (415) 353-2421
(415) 353-2051
Bartlett, Nancy            W MO, St. Louis Pending Lymphoma 800-600-3606
DeVos, Sven  UCLA Jonsson Comprehensive Cancer Center  W CA, Los Angeles YES Lymphoma (310) 829-5471
Gaensler, Karin  Division of Hematology/Oncology W CA, San Francisco Pending Lymphoma (415) 353-2421
Gopal, Ajay Seattle Cancer Care Alliance, University of Washington School of Medicine; Fred Hutchinson Cancer Research Center W WA, Seattle YES Lymphoma (855) 557-0555
Holman,  Peter R.  University of California, San Diego W CA, La Jolla Pending Lymphoms (858) 657-6790
Kipps, Thomas  University of California, San Diego Dept of Medicine W CA, San Diego Pending CLL (858) 534-5400
Laport, Ginna Stanford University Medical Center W CA, Stanford Pending Lymphoma  650 498-6000
Maloney, David Fred Hutchinson Cancer Research Center;Seattle Cancer Care Alliance W WA, Seattle Pending Lymphoma (855) 557-0555
Nichols, Craig Viriginia Mason Medical Center W WA Pending Lymphoma  (888) 862-2737
Pagel, John  Swedish (Seattle) W WA, Seattle Pending Lymphoma 206-215-3245
Persky, Dan  University of Arizona Cancer Center W AZ,  YES Lymphoma (520) 694-2873
Pinter-Brown, Lauren  UCLA Jonsson Comprehensive Cancer Center W CA, Los Angeles YES lymphoma (310) 829-5471
(888) 662-8252 
Press, Oliver  Fred Hutchinson Cancer Research Center W WA, Seattle Pending Lymphoma (855) 557-0555
Rosen, Steven  City of Hope  W CA, Los Angeles YES Lymphoma 800-826-HOPE (4673)
Rubenstein, Martin Southbay Oncology Hematology Partners W CA, Cambell Pending Lymphoma  408-376-2300
Spurgeon, Stephen    OHSU Knight Cancer Institute W WA, Seattle Pending Lymphoma  

 


Patient Use of the List

bullet

Thank you for letting us know that you have used our TRIAL TALK specialist list to arrange for a second opinion. 

If you clicked the button below, we add that click to the count ... in order to estimate how often the list is used.
which will help PAL to gain financial support for this and related projects.

bullet

Please also feel free to contact us by email  ... if the specialist contact information has changed -
OR just to provide feedback about the project and how it worked for you. 

All such information is confidential.  No identifying information will be disclosed or maintained.



Why consider trials? 

Testing new study protocols - especially when done with the assessment of tumor samples - is the basis for progress against lymphoma. 

Importantly, participating in a clinical trial can also match well with your treatment goals or unique and unmet clinical needs.  While
lymphoma is often responsive to standard chemotherapy and radiotherapy, there remains an urgent need to: 

 * To increase the cure rate -- and to cure more types of lymphoma
 * To improve the duration and quality of remissions
 * To overcome treatment-resistance
 * To decrease the short- and long-term toxicity of treatments overall
 * To identify who is likely to benefit from a treatment ... and who will experience only unproductive toxicity ...   
 
      
Due to the rapidly emerging insights into the biology of lymphoma, the potential to make progress and to benefit directly from study participation has never been greater!   Here also we provide easy-to-use tools to assist patients, caregivers, and oncologists in finding trials -requiring no registration steps or the disclosure of personal information:


Related Resources

Key questions for patients:
 

bullet

What is the natural history of my type of lymphoma, and how effective is the standard of care? 

bullet

What are my unique risk factors?

bullet

What clinical trials are appropriate as therapy for my circumstance - which seem to compare well with the standard of care?

 
bullet
PAL: 7 reasons to consider trials based on your clinical circumstance
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PAL: Big Picture Questions

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Optimizing Consults PAL | Brochure

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Treatment-Specific Questions by PAL

Research Advocacy:

 

bullet

PAL's JCO abstract on trial participation

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On Giving Tissue and Blood - an advocate's perspective PDF
bullet
PAL: AGENTS targeting disease pathways
 
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PAL:  Agents that Target Disease Pathways  PDF 

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PAL:  The Dose - the importance of getting it right

 
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Dr. Rosenbaum:  why second opinions so important?  EverydayHealth
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Tips - Science-Based Medicine: How to Chose a Doctor
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The Importance of a Second Opinion | NFCR http://bit.ly/1e2MG9L



 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
Patients Against Lymphoma, Copyright 2004,  All Rights Reserved.