Doctors
Last update:
04/29/2013
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TOPICS
Patient-Recommended
Lymphoma Oncologists
Cancer Centers
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Second Opinions
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Find Doctor |
Finding
Specialists - TIPS |
Find
Specialty Oncologists |
CLL|
Find Surgeon?
Complaints? |
Communicate with Doctors
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Optimizing
Doctor Visits |
Pathology
- Getting a Second Evaluation | Research
News |
Find Doctor /
Second Opinion
Does
the oncologist you are considering or consulting:
- have experience in the treatment of your specific cancer?
- conduct clinical trials (is a clinical trial investigator)?
- actively participate in professional organizations
dedicated to continuing education and professional development in
the field?
- shows compassion and the ability to communicate and partner
with you?
OTHER
TIPS:
Adapted from NYT article on how to find good medical care
nytimes.com
* Find out which doctors your closest friends really like, ...ask
trusted friends, neighbors and colleagues whom they see and feel
comfortable with."
... "I cannot emphasize enough how important it is for every
patient to have a trustworthy primary care physician who can help them
navigate our challenging, but potentially excellent, health care
system," said Dr. David T. Tayloe
* Stressed the importance of patients doing research and becoming
active part of the medical team.
... "becoming more active and knowledgeable can only improve
your care." ... "This is a shared responsibility between the
physician and the patient
for the patient's health," said Dr. Ted Epperly
* Exercise caution when going through information from commercial or
industry Web sites.
... "The Web can be a good place but also a dangerous
place," Dr. Epperly said. "It's important to find sites that
aren't biased and that provide evidence-based information."
* Ask prospective doctor questions like how much experience he or she
has with a specific condition or operation
* Make sure you feel part of a shared decision-making process and
comfortable saying how you feel, or that you don't understand or that
you respectfully disagree.
* Identifying high quality medical groups or hospitals that
"carefully monitor the quality of the clinicians affiliated with
them" and that provide "decision support, continuous quality
improvement and continuing education to keep their clinicians
functioning well."
* Contact the national professional society for that doctor's
specialty. (for lymphoma: ASCO / ASH)
... a plus: membership in the national professional society of a
specialty - often referred to as being a "fellow" in the
organization, as in Fellow of the American College of Surgeons, or
F.A.C.S. - requires board certification and a certain degree of
clinical experience.
...look for: M.D., F.A.C.P."
* Ask about participation in clinical trials.
* Caveats... bedside manner is only one of many concerns. "While
excellent quality health care integrates caring with doing the right
thing medically," she said, "a caring attitude can mask poor
quality medicine."
* Most critical - part of deciding on any physician is the quality of
the first appointment.
... arm yourself with the right questions [in writing - and a summary
of your medical issues and treatments]
* Seeking a surgical oncologist?
... ask surgeon about the number of times annually she or he
performs the specific operation needed,
... ask also about the hospitals in which those operations are
performed. (research has shown that hospital mortality rates are lower
when those operations are performed frequently.)
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Getting an accurate diagnosis and finding an expert you can communicate with are
critical to receiving optimal care.
Regarding
Second Opinions:
 Second opinions can raise the level of the care you
receive, because it set's up a kind of peer review. In addition it
provides a second informed- and sometimes new perspective.
Consulting an expert provides an excellent opportunity
to inquire about the many promising
clinical trials that may be appropriate for your clinical circumstance.
Finding
and Choosing
a Qualified Oncologist
Return to top
Communicating with your
doctor
On Optimizing Office Visits:
Our physicians have many patients,
some with urgent needs, and that the day is short. So, it
can help to be respectful of your doctor's time. Ask if it's a good time to ask questions ...
Think like a corporation: Produce a concise executive summary that describes
your history and main objectives. Have ready the chronology of tests, treatments, lab results, and outcomes that show the trends.
.gif) |
Prepare in writing: your main questions
first ...
and a list of the medications, events, and
allergies you may have. |
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Provide a summary of your goals. Provide information on the clinical trials you think worth discussing.
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And sometimes just in the making
of your report and questions, new ideas will arise.
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Be concise -- avoid handing your doctor a 20 page report - adding one stack to another.
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To assist you in your mission, we provide patient support tools here
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Find a Specialty Oncologist Near You
Return to top
Questions To Ask Your Radiation Oncologist
Return to top
Finding Specialists - Tips
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How To Find a Doctor or Treatment Facility If
You Have Cancer
cancer.gov |
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Finding a New Doctor
cancer.net |
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“America’s Top Doctors” (Fifth Edition)
The Best in American Medicine: America’s
Top Doctors and Hospitals
childrenshospitalla.org
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American Board of Medical Specialties
abms.org
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Licensing, background, and disciplinary information on physicians
docboard.org
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Centers and Oncologists
that Specialize in CLL PAL
Return to top
Resources FOR Physicians
PAL
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Complaints About Doctors?
We believe that the overwhelming majority of physicians and their
staff are dedicated to meeting the needs of their patients.
However, there are sometimes unfortunate exceptions.
What should you do in such cases? When "the duty was not acted
upon ... the provider failed to provide the standard of care."
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We recommend that you first write your doctor
directly regarding your concerns - describing what happened
concisely but in detail.
Next, if necessary, copy the State Medial Board
... if the problems you cite are not addressed or recognized.
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To locate the Medical Board in your
State:
Go to:
http://www.fsmb.org/directory_smb.html
Then select the letter for your state.
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In the meantime, use the resources
on this page to help locate and choose another physician, or ask neighbors,
friends, support groups, ... for referrals.
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Return to top
Finding a Competent Surgeon / Hospital
Signals of Excellence
Adapted from Medical Matters
Consumer Reports (subscription required)
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Volume counts:
How often surgeons and hospitals perform the procedure -
which can be especially important
for unusually complicated procedures.
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Complication rates: Volume
is not a perfect indicator of excellence, so too are issues that
arise after surgery, which can be due to the medications
prescribed, and the quality of follow up care.
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Questions for the surgeon:
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Is your Board Certification up to date?
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How many operations of this type have you done
in the last year? |
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What is your success, failure and complication
rate?
A competent surgeon will be happy
to provide this information. |
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See Hospital Compare
A quality
tool provided by Medicare
http://bit.ly/cE6Bwo
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Click
"Find and Compare
Hospitals" |
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Select
"Find a hospital
within a certain distance of a ZIP Code"
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Enter Zip code and distance.
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Check at least two hospitals in region.
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Click
Compare
button. |
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Patient-Recommended Lymphoma Specialists
United States:
Northeast |
Midwest
| South/Southeast |
West/Southwest
Countries:
Canada
| United Kingdom |
Spain |
Germany
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How to recommend your
doctor?
First review our
criteria, what you should provide,
and the limitations of recommendations of this kind:
1) your oncologist is respected by his or her peers, and has demonstrated
a willingness to be a partner in your care:
2) that
he or she communicates about the full range of treatment options
(standard and investigational) - providing the rationale for each choice.
We reserve the right to exclude referrals
when the physician promotes unconventional therapies or
diagnostic tests that have
not been validated by clinical research.
NOTE: Because we cannot verify all the
recommendation received, please consider this list to be only a starting
point in your search.
Please send your referral in
this format:
STATE, CITY,
CENTER, ADDRESS NAME, Phone, Web/Email
You can send an email referral by
clicking Here
PI means that this physician also conducts
lymphoma-specific clinical research.
The information
presented on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright ©
2004,
All Rights Reserved.
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LIMITATIONS:
The list is based on
submission by patients, and therefore excellent oncologists may not be included
simply because patients haven't yet taken the time to tell us.
Submissions are not science-based -
for example, are subject to
patient bias, such as chance interpersonal chemistry.
See sidebar for our recommended criteria.
KEYS:
PI
= primary investigator - does clinical research.
ES = Expert Status (See also
Experts)
NORTHEAST UNITED STATES
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CT, New Haven
Yale Cancer Center, New Haven
Francine M. Foss, MD (PI / ES)
Cutaneous T-cell Lymphomas | Web
Profile
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CT, The Whittingham Cancer Center
24 Stevens Street, Norwalk, CT 06856
Dr. Richard Frank, (203) 845-4899,
Richard.Frank@norwalkhealth.org
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MA, Boston
Dana Farber Cancer
Institute, 800- 320-0022
Dr. Arnold S. Freedman (PI / ES) (617) 632-3441 Web
Profile
Dr. Lee Nadler (PI / ES) (617) 632-3331
George Canellos (PI/ ES) , M.D. (617) 632-3470
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DC, Washington
Georgetown University Medical Center - Lombardi Comprehensive Cancer Center, 3800 Reservoir Road, NW Washington, DC 20007,
Head of Hematology, and Director
of Hematology Research
Dr. Cheson is Professor of Medicine (PI / ES) (202) 444-2223
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MD, Bethesda
Wyndham Wilson, M.D., Ph.D.
(PI / ES)
Head, Lymphoma Therapeutics Section
Senior Investigator
National Cancer Institute
Building 10 CRC, Room 4
10 Center Drive
Bethesda, MD 20892-1203
Phone: 301-435-2415
Fax: 301-480-3444
http://ccr.cancer.gov/staff/staff.asp?profileid=5829
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NJ, Forked River
Hematology Oncology Associates of Ocean County
Dr. Sara Jane McGee (609) 693-2000)
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NJ, New Brunswick
Robert Wood Johnson Hospital,
The Cancer Center of NJ
Dr. James Salwitz
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NJ, Morristown
Carol G Simon
Cancer Ctr
PO Box 1089 100 Madison Ave Morristown, NJ 07962-1089
Dr. Charles Farber
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NJ, Hackensack
Dr. Andre Goy
John Theurer Cancer Center at
Hackensack University Medical Center
Web
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NY, Buffalo
Roswell Park Cancer Institute"
Myron S Czuczman
1-800-767-9355
(PI / ES) |
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NY, New York,
Columbia University Medical Center
Kara Kelly, MD
Academic Title(s):
Professor of Clinical Pediatrics
Director Integrative Therapies Program for Children with
Cancer
Director Leukemia/Lymphoma Program
Contact Information:
Tel: (212) 305-9770 Press 1, then 1
Fax: (212) 305-5848
Email:
kk291@columbia.edu
WEB |
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NY, New York
Center for Lymphoma and Myeloma, Weill Cornell Medical College, The New York Presbyterian Hospital,
Dr. Richard
Furman (PI / ES) (212) 746-2932
Specialty: CLL
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NY, New York
NY Presbyterian Hospital Weil Medical
College,
Dr. Rebecca Elstrom
(PI / ES)
web
Dr. Peter Martin,
646-962-2068
Dr. Morton Coleman (PI / ES) (212) 517-5900
Dr. John Leonard (PI / ES) 646-962-2068
(fixed)
Specialty: antibody-based research
Owen A. O'Connor, MD, PHD, (is rumored to be at Weil now)
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NY, New York,
Memorial Sloan-Sloan Kettering Cancer
Center
Steven M. Horwitz, MD (PI /ES) (specialty: t-cell lymphomas)
Dr. Carol Portlock (PI /ES)
Dr. Zelenetz (PI /ES) |
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NY, New York,
NYU Langone Medical Center (NYU-LMC)
Owen A. O'Connor, MD, PHD, (PI / ES)
toll free
number, 888-7-NYU-MED (888-769-8633) |
Web
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NY, NY, Queens
Mount Sinai Medical Center
Dr. Joshua Brody (PI / ES)
ASSISTANT PROFESSOR Medicine, Hematology and Medical
Oncology
Web Profile
mountsinai.org |
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NY, Rochester
Wilmot Cancer Center in
Strong Memorial Hospital
Dr.
Richard I. Fisher (PI /ES) , (585) 275-0842 (PI / ES)
By Richard I. Fisher
www.urmc.rochester.edu
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NY, Staten Island
St Vincent's
Dr. Thomas Forlenza (718)
816-4949
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PA, Philadelphia
University of Pennsylvania, 15 Penn Tower, 3400 Spruce Street, Philadelphia, PA 19104.
Dr. Stephen Schuster (PI / ES) (215) 614-1846
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PA, Philadelphia
Hospital of the University of Pennsylvania
Abramson Cancer Center
Dr. Sunita Nasta (PI) 215-615-5858
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PA, Philadelphia
Fox Chase Cancer Center
Dr. Mitchell Smith, MD
(PI)
(215) 728-2674 (PI / ES)
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PA, Pittsburgh
Retina Vitreous Consultants, 412-683-5300
Dr. Louis Lobes, MD,
Specialty: orbital lymphomas
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PA, Pittsburgh
University of Pittsburgh
Physicians, Department of Neurology, Hillman Cancer Center
5115 Centre Avenue Pittsburgh, PA 15232 Phone: 412-692-4724
Frank Scott Lieberman, MD,
Specialty: Neuro-Oncology (PI)
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Return to Patient-Recommended
Doctors
WEST / SOUTHWEST UNITED STATES
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CA, Duarte (near LA),
City of Hope -
Lymphoma Team
Specialized Program of
Research Excellence (SPORE).
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CA, Campbell
Southbay Oncology Hematology Partners,
50 E. Hamilton Ave. Ste. 200, Campbell, 95008
Martin Rubenstein M.D., F.A.C.P. (PI)
(408) 376-2300 |
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CA, La Jolla
University of California, San Diego
Hematology/Oncology, Cancer Center & Department of Medicine,
Peter R. Holman, M.D., (PI) (858) 657-6790
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CA, San
Francisco
Division of Hematology/Oncology, 400 Parnassus Avenue Suite A502 San Francisco, Ca. 94143-0324, Tel: (415) 353-2421, Fax: (415)
353-2467
Dr. Karin Gaensler
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CA, Santa Barbara
Cancer Center of Santa Barbara (805) 563-5800
http://www.ccsb.org
Daniel Greenwald, M.D.
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CA, Palo Alto
Stanford Cancer Center, Lymphoma Clinic
875
Blake Wilbur Dr., Clinic
Dr.
Ronald Levy (PI /E) (650) 723-7621 |
Web
Profile
Specialty: immunotherapy-based research
Dr.
Sandra Horning (PI /E) (650) 725-6456 |
Web
Profile |
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CA, Santa Monica
Dr. Sven DeVos, M.D., PhD.
(PE, PI)
Associate Professor of Medicine
UCLA Lymphoma Program / Division of Hematology/Oncology
2020 Santa Monica Blvd.
Santa Monica, CA 90404
Office: (310) 829-5471
Fax: (310) 582-6391
Web profile |
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CA, Whittier,
Hematology/Oncology,
Dr. Glenn Tisman (562)
789-8822 |
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CO,
Denver
Colorado blood cancer institute
1719 east 19th Ave suite 300
Denver co 80218
Phone 720-754-4800 |
Email
Dr. Jeffrey Matous (PI /E)
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OR, Portland,
OHSU Knight Cancer Institute
Richard T. Maziarz, M.D.
Medical Director, Adult Stem Cell Transplantation Program &
Center for Hematologic Malignancies
Web profile:
http://www.ohsu.edu/
To Schedule an appt: 503 494-5058
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TX, Dallas, Oncology/Hematology, Sammons Cancer Institute,
Baylor School of Medicine
Mark Walberg, M.D., Ph.D (214) 370-1000
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TX, San Antonio, TX, Hematology/Hematologic Malignancy, Cancer Care Centers of South Texas, (210) 595-5300.
Roger Lyons, M.D., F.A.C.P. (PI)
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WA
Univ. of Washington
Dr.
Maloney, (PI / ES) (206) 288-7400
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WebProfile
Specialty: antibody-based research
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WA
Seattle Cancer Care Alliance
825 Eastlake Ave E,
G3-200
Seattle, WA 98109-1023
Dr. Oliver Press (PI / ES)
(206) 288-SCCA (7222) Fax: (206) 288-1025
Web
profile
Specialty:
Radioimmunotherapy-based
research
Dr. Gopal
(PI / ES)
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WI, MADISON, WI 53705
Dr. BRAD S KAHL (PI / E)
ASSOC PROFESSOR
4059 WIMR 1111 HIGHLAND AVE
Phone Number
(608) 263-1836
Website:
wisc.edu
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WI
Minocqua, Lakeland Center
Dr Weiss
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Return to Patient-Recommended
Doctors
SOUTHEAST UNITED STATES
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FL, Ft. Lauderdale
North Broward Medical
Center Cancer Center Pompano Beach,
Dr. Mayda Arias (954) 786-6460
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FL, Fort Walton Beach
Emerald Coast Oncology And
Hematology Associates
1024 Mar Walt Dr
Fort Walton Beach, FL 32547
(850) 863-3148
Henry Hsiang, MD
Harvey Hsiang, MD
Ming Chang, MD |
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FL, Tampa
Moffitt Cancer Center
Dr. Sotomayor
Web |
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MS, Jackson
Oncology Associates PLLC Dr. 1815 Hospital Drive, Jackson, MS 39204
Dr Tammy Young (601) 373-4421 (800) 776-2378
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NC, Asheville
Asheville Hematology and Oncology Associates, P. A
Dr. James Puckett
(828) 254-8232
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SC, Spartanburg
Gibbs Cancer Center at Spartanburg Regional Hospital
Dr. Shamilla Mehta
Web |
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SC, Charleston
Hollings Cancer Center
A National Cancer Institute Designated Cancer Center, 96
Jonathon Lucas St. P.O.Box 250635, 903 CSB Charleston, SC 29425
Robert K. Stuart, MD 843-792-4271
Professor of Medicine, Hematology/Oncology
Director, Hematological Malignancies and BMT Programs
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Return to Patient-Recommended
Doctors
MIDWEST UNITED STATES
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IA, Iowa City
University of Iowa Hospitals and
Clinics,
Dr. Brian Link (PI / ES) (319) 356-8508
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IL, Chicago, Northwestern University,
The
Feinberg School of Medicine,
Dr. Leo Gordon (PI / ES) (312) 695-4546
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IL, Chicago
The Rush Cancer Institute
Dr. Gregory (PI / ES)
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IL, Chicago
University of Chicago Medical Center
Dr. Sonali Smith
Associate Professor of Medicine
Center for Advanced Medicine
5758 S. Maryland Avenue
Chicago, IL 60637
Website |
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IL, Chicago
Lurie Cancer Center of Northwestern University Medical Center,
Dr. Steven Rosen
(312) 908-5250
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IL, Chicago
M.D. Rush Medical
Center
Dr. Stephanie Ann Gregory
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IN, South Bend
Michiana Hematologist/Oncologist Center, in South Bend,
Dr. Rafat Ansari (574)
234-5123 |
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IN, Indianapolis
Hematology-Oncology, Clarian Health-Methodist Hospital, 1704 N. Capital Ave. Indianapolis, IN 46202 (317) 962-9000
Sumeet Bhatia, MD
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IN, Indianapolis
Associated Vitreoretinal and Uveitis Consultants, 8704 N Meridian St. Indianapolis, IN 46260
Ramana S. Moorthy, MD (317) 571-1501
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MI, Ann Arbor
University Michigan Comprehensive Cancer
Dr.
Mark Kaminski (PI / ES)
734-647-8901
Specialty: Radioimmunotherapy-based research
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MN, Minneapolis
Vicki Morrison, M.D.
(PI / ES)
Professor of Medicine
VA Medical Center
Hematology/Oncology (111E)
One Veterans Dr
Minneapolis, MN 55417
Phone: (612) 725-2000 |
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MN, Minneapolis
University of Minnesota
Hospitals,
(612) 625-5411
Dr. Bruce Peterson (PI)
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MN, Rochester
Mayo
Clinic,
(507) 284-2511
Dr. Thomas Haberman (PI)
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MN, Rochester
Mayo
Clinic,
(507) 284-2511
Dr. Stephen Ansell (PI)
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MN, Rochester
Mayo
Clinic,
(507) 284-2511
Dr. David Inwards (PI)
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MN, Rochester
Mayo Clinic,
(507) 284-2511
Dr. Thomas E. Witzig (PI)
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MO, Joplin
Hematology/Oncology. Freeman Cancer Institute
3415
Macintosh Circle Drive
P.O. Box 2644, Joplin Missouri 64803-2644
Dr. Tracy L. Coe, MD | (417) 782-6630 / (888) 234-3737
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MO, St Louis
Alvin J. Siteman Cancer Center, 4921 Parkview Place, Suite B, Floor 7, St. Louis, MO 63110
Dr. Bartlett, Nancy Lee (PI)
(314) 747-9281 Fax: (314) 362-1608
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NE, Omaha
University of Nebraska Medical Center
Dr. James
Armitage (PI / ES)
(402)-559-7290, Web
Dr. Julie Vose (PI / ES)
(402) 559-3848
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OH, Columbus
Arthur James Cancer Hospital
at OSU
Dr. Eric Kraut (614) 293-8606
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OH, Columbus
Ohio State University
John C Byrd MD (CLL expert)
Web profile:
http://cancer.osu.edu |
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OH, Canton
Dr. James Schmotzer
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OK, Tulsa,
Dr. Peter Aran - Chief medical Officer of St. Francis
Hospital
Dr. Joseph P Lynch,
Internal Medicine and Hematology & Oncology and Medical
Oncology.
Oklahoma Oncology
6585 S Yale Ave Ste 701
Tulsa, OK |
Return to Patient-Recommended
Doctors
CANADA
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Canada, Vancouver
BC Cancer Agency
BCCA, 600 West 10th Avenue,
Rm 3225
Vancouver, BC V5Z 4E6
Dr. Joseph M. Connors (PI)
(604) 877-6000
Randy Gascoyne, B.Sc.,
M.D. (PI / ES)
Specialty: biospecimen-based research
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Canada, Montreal, Quebec,
Jewish General Hospital
Pav E, 3755 Côte-Ste-Catherine Road,
Montreal, Quebec, CanadaH3T 1E2
Dr.Stephen N. Caplan, MD, FRCP 514-340-8222 ext. 8248
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Canada
McGill University
Dr.
Pierre Laneuville (PI)
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Canada
Maisonneuve
Dr. Jean Roy jean.roy@ssss.gouv.qc.ca
practices out of hospital)
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Return to Patient-Recommended
Doctors
OTHER COUNTRIES
Germany
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University Hospital of Cologne
Prof. Dr. Peter Borchmann
Studiensekretär GHSG
Universität zu Köln
Kerpener Straße 62
D-50924 Köln
Telefon: (0221) 478-5933 |
UK
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Nottingham UK, Consultant Haematologist,
Nottingham City Hospital,
0115 9691169
Dr. Andy Haynes
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University College London Hospital
Prof David C. Linch
Tel: 020 3447 9443
Fax: 020 3447 9911
Email:
melissa.crozier@uclh.nhs.uk
Contact info:
uclh.org/ |
Spain
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Spain,
Pamplona
Lab of Immunotherapy Cell Therapy Area Clínica Universitaria, University of Navarra
Avda. Pio XII, 36 31008 Pamplona, Spain
Maurizio Bendandi, M.D., Ph.D. (PI / ES)
Phone (+34 606 002 087)
Fax: +34 948 296 500 | email: mbendandi@unav.es
Specialty: immunotherapy-based research
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Pathology
- Getting a Second Evaluation
Return to top |
Pathology - getting
a second evaluation
Related Topics
Diagnosis
& Pathology
Getting a Second
Pathology Evaluation
Prognostic
indicators
Performance
Standards
Diagnostic
Tests
Disease
Direction Indicators
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In the News:
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The Armed Forces Institute of Pathology
(AFIP), which is the top-listed referral site for pathology
second opinions on the Lymphomation list, regrettably is no
more.
Although it was by far the world's largest repository of
esoteric pathology specimens and slides, it was axed several
years ago in one of the never-ending rounds of federal
government downsizing.
So it needs to be removed from the web page.
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So how necessary is a second evaluation of the tissue sample?
An accurate diagnosis is a
key to receiving the the best treatment. We have received a good
number of reports from patients on the support lists of incorrect or missed
diagnosis. Unfortunately, it is more common than we would like to
think.
Please know that your pathologist can send the slides out to the
center you indicate for a nominal fee. Insurance reimbursement
is also likely. No matter. If you can find a way to have this
done, we think you ought to.
Here's one report on this
question from a fairly large study:
Comparison of Referring and Final Pathology for Patients With
NHL in the National Comprehensive Cancer Network
From this report see
table showing findings by subtype:
Referral and Final Pathologic Diagnoses for Patients With
Non-Hodgkin's Lymphoma (n = 731)
A survivor writes: "I want people to be
aware of the importance of a second opinion. For almost eight years I
have been treated for Mantle cell lymphoma. I was sent to a radiologist
for evaluation of treatment and he questioned my diagnosis as Mantle
cell is very aggressive and if I have had it for 8 years and I look so
healthy, he said he has treated many patients with mantle cell I did not
fit the diagnosis. He had previous biopsies sent to an entirely
different hospital and have been diagnosed with low grade indolent
lymphoma."
DR LEONARD writes:
..." it is easy to ascertain a
pathologic second opinion — it’s simply a matter of sending the
slides; the patient doesn’t have to go. Generally, pathologists will
discuss it with you over the phone, even if you’re at another
institution. It’s not a big deal to do, and the pathology is key. I
believe a pathologic second opinion is more important than another
lymphoma subspecialist’s opinion. We re-evaluate a situation based
on our pathologist giving us information that the primary oncologist
didn’t have; therefore, I encourage patients to ascertain a
pathologic second opinion. It is a relatively easy thing to do, and it
gives the patients some reassurance.
I think all patients diagnosed with mantle cell
lymphoma should also have a second pathology opinion. That’s a hard
diagnosis to make and the implications, as far as the prognosis, are
enormous. Additionally, if the disease is acting like one type of
lymphoma, but the pathologist is telling you it’s another type of
lymphoma, maybe that’s a red flag that you ought to have it
evaluated by someone else.
Finally, gray areas exist when you see follicular
and diffuse lymphomas, and you are trying to decide if transformation
has occurred and whether you need to use an anthracycline — this is
an area in which I would encourage a second opinion from the
pathological standpoint."
Source:
meettheprofessors.com
Centers
Experienced with Pathology Evaluations
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DISCONTINUED: Armed Forces Institute of Pathology offers expert pathology consultation for both military personnel and civilian cases
afip.org
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CA - Stanford University - Pathology Dept
Stanford
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TX - MD Anderson Cancer Center - Outside consultation services
MDACC
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Other Country:
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Canada, Vancouver
BC Cancer Agency
Randy Gascoyne, B.Sc., M.D.
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Criteria
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University Teaching Hospitals |
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National reputations |
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Evaluate
lymphoma specimens often |
Related articles
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Common misdiagnoses in lymphomas and avoidance strategies
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Pathology the Gold Standard 
A Retrospective Analysis of Discordant  Second-Opinion
Lymphoma Pathology and Its Impact on Patient Care
The most common reasons for discordance were:
malignant non-malignant - 27 cases,
Non-Hodgkins Hodgkins - 14 cases,
lymphoma solid tumour - 18 cases and
more or less aggressive lymphoma - 47 cases.
Conclusions: (1) a discordance (one pathology finding not
matching a second) rate of 16% was similar to previous studies and
this high rate maybe improved through centralization of lymphoma
pathology;
2) these types of patients are clearly at risk for
harm, as best exemplified by patients who were felt to have a
benign pathology that was actually malignant;
3) Discordant
pathology has clear clinical implications including serial
biopsies, invasive testing and treatment delays.
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Pitfalls in diagnostic hematopathology -
Part II full
text
The overlapping features of
malignant lymphomas create a diagnostic "grey zone" , and lead
to the invention of "grey zone lymphomas".
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Comparison of Lymphoid Neoplasm Classification:
A Blinded Study Between a Community and an Academic Setting Medscape (free
login req.)
Am J Clin Pathol 115(5), 2001
Summary:
188 cases evaluated
167 cases were concordant (correctly diagnosed) - 88.8%
21 cases were discordant (incorrectly diagnosed) - 12.2 %
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Research News
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Research News
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How Doctors Think
NPR.org
This question, not surprisingly, spawned others: Do different
doctors think differently? Are different forms of thinking more or
less prevalent among the different specialties? In other words, do
surgeons think differently from internists, who think differently
from pediatricians? Is there one "best" way to think, or
are there multiple, alternative styles that can reach a correct
diagnosis and choose the most effective treatment? How does a
doctor think when he is forced to improvise, when confronted with
a problem for which there is little or no precedent?
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Patient-Support Tools Medscape General Medicine [TM]
Future Directions: As limited and unsatisfying as information technology for patients has been, Blumenthal points out that the transformative potential is
great. The fundamental premise of the practice and economics of medicine is a wide asymmetry of
information.
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Study: 1 in 3 doctors hides options - Physicians withhold
information on treatment choices MSN.com
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