Legislative item of interest
H.R. 460: Patients’ Access to Treatments Act of
Text of H.R. 460: Patients’ Access to Treatments Act of 2013
Key snip: A [insurance plan] that
provides coverage for prescription drugs ... shall not
impose cost-sharing requirements applicable to prescription
drugs in a specialty drug tier that exceed the dollar amount
(or its equivalent) of cost-sharing requirements applicable
to prescription drugs in a non-preferred brand drug tier (or
prescription drugs in a brand drug tier if there is no
non-preferred brand drug tier).
Let your lawmaker
know you live in their district.
State your issue at the beginning of the letter.
Try not to exceed
Let your elected
official know how this issue affects you personally.
In closing, ask
for a written response to document your lawmaker's
Call the National Bone Marrow Donor program at
800 MARROW2 and become a registered donor.
IV / oral -
The Columbus Dispatch:
Cancer drugs should be treated equally
to think that this inequity in coverage [for
oral versus IV administered drugs] may keep
patients from receiving the most-effective
treatment available for their cancer.”
Urging GSK to maintain timely patient
access to Bexxar PAL
Resolution 143 to make
September Blood Cancer Awareness Month.
The law passed! Please thank your representatives.
Against Lymphoma - letter to CMS on Radioimmunotherapy
reimbursement policy 2009-CMS-letter.PDF
"While PAL supports the Proposed Rule policy
of using ASP (Average Sales Price) methodology, we respectfully
request that claims default to cost-to-charge per MIPPA rather
than hospital claims. This would give patients the “safety net”
we need for continued access to these lifesaving drugs should a
default claims procedure be necessary."
Agenda for Feb 2008 Meeting with Mr. Kuhn
regarding CMS / RIT
CMS cover Letter | Report
ALERT: The Senate is now debating legislation that
would jeopardize insurance coverage for cancer patients. It will take
you less than one minute to send a letter (composed by the
Leukemia and Lymphoma Society) to express your concern.
patients and doctors affected by Hurricane Katrina
NCI's Cancer Information Service:
ASCO: Oncology practices in the Gulf Coast and
across the country open and able to treat people
with cancer who have been dislocated and are in
need of acute care.
Alert: Please read
and endorse our letter
concerning CMS policy that would limit coverage of
off-label use of cancer
review our perspective on why we must support The National Biospecimen Network
in order to facilitate rapid and significant progress against
lymphomas and all other cancers
reimburse for Zevalin and Bexxar? Status of decision here.
Also how to make public comment about off-label use of these agents, which could be
very important to folks with MCL, and CLL/SLL, etc. cms.hhs.gov
Picture A Cure: Putting
A Face On Cancer - ACS Advocacy Action
"what if you could combine the ease of writing a letter with the impact of meeting face-to-face? You can through our advocacy tool “Picture A Cure.”
Medicare policy will deny access to novel therapies,
including treatments that win approval based on surrogate endpoints.
Click here to act
A challenge to both Congress and the FDA to permit
public disclosure at critical times in drug development for deadly
here to act
H.R. 460 - Patients' Access to
Treatment Act of 2013
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