PAL-Moderated Support Lists:
We encourage members to ask and
respond to questions. This is when our
support groups are at their best.
We also regularly provide post
news items on lymphoma, such as about new
Our purpose is to provide timely
evidence-based support and information for all
types of lymphoma of all types - Hodgkin,
Non-Hodgkin (b- and t-cell), and CLL.
We make use of privacy features
to protect your privacy. For example, your
posts are not searchable on the web.
Our lists are moderated. For
Yahoo groups, only questions and responses that
are On Topic will be distributed to all
subscribers all other posts will be compiled
and sent as one email in digest form as time
allows. See for
* About lymphoma and its treatments or related
* Your questions and replies are of primary
Our resource for information developed with the
assistance of our scientific advisors:
REGARDING INFORMATION ON LYMPHOMA: Be
cautious about accepting online medical
information - particularly testimonials.
Scrutinize the study methods (size, type and
number of studies). Has it been confirmed by
another study group? What are other experts
saying about it? Does it apply to your diagnosis
and circumstance? ... check with your doctor,
who has training and first-hand information.
Keeping an open mind includes being
skeptical about the information we receive!
As always, PAL moderators will reject or edit
posts with disrespectful language (a rare
Regarding CONTROVERSIAL TOPICS, such as public
policy issues of concern to patients:
We will require politically
neutral language in order to keep the focus
on the issue of concern instead of on a
political party or a leader - or their motives.
We ask also that you cite your sources. The
sources should be direct (not hearsay, opinion
column, talk show host, etc.) An example of a
direct source would be citing the law that
sets a health care policy, or the published
study that evaluated the intervention for
lymphoma. Be wary of sources that
are partisan ... or does not provide for peer
As always, this is a work in progress - the
purpose being to provide you with timely support
and evidence based information on lymphoma and
All the best,
~ Karl Schwartz, President
Email Moderator if you have any questions
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Background on moderation
On the Yahoo groups based lists
we sometimes get emails from subscribers who
want information only and resent getting their
inbox filled with patient-to-patient
That said, others appear to like having a
feeling of community - where they can talk about
anything anytime ... encourage one another, and
get reassured (the community approach).
So these are two equally valid and
understandable desires and expectations.
Trying to achieve both or please both groups is
not possible. We are not just giving lip-service
to the value of the community approach, because
patients and caregivers can be under
considerable stress and some of us need and rely
on this form of communication with other
patients - or will in different parts of our
life. The On-topic approach does not prevent but
it does inhibit this kind of community.
In general, the smaller the group the less
concern there will be with the open community
approach. However, larger groups can get chaotic
quickly with this format ... leading to
everyone's inboxes getting flooded with
information (political, shopping, personal
issues, congratulations to individuals, ...)
that is not meant for everyone or not what
everyone has signed up for.
While we see the value of both approaches, the
community approach is more prone to
misunderstandings (blow ups, etc.)- especially
in the larger groups in an email-based system.
When this happens it can reflect poorly on PAL -
an organization that depends on community
support and it can make everyone feel
So this is the reason PAL developed the
PAL forum, because
participants in that venue can chat and have
off-topic conversations without these messages
being distributed to everyone's inbox. So far it
hasn't had a lot of that kind of activity -
mainly it seems because t takes a little time to
So the policy and guidelines We've decided on
for Lymphomation tries to meet both goals by
moderating posts to make sure they are on topic
and of general interest to all subscribers.
We do appreciate that compiling
person-to-person messages will not be satisfying
to many because it interrupts the flow of
conversation - but at least for now we
feel this is the better choice given the size of
the Lymphomation group and its expected growth.
I hope you will join me in
encouraging people to try the
PAL forum (our web-based venue) to help to
better meet the social needs of our community