-
Online Support Groups (Lists) -
Acor.org
| BMT-TALK (Transplant) | CLLResearch
| CLL/SLL | CNS Lymphoma | Hematological | MALT
| Mantle Cell | NHL-Follicular | NHL-Large Cell Diffuse | NHLCyberFamily
| NHL-info |
NHL-Low | NHL-UK | NHL-Vaccine
| Parents with Cancer |
Waldenstrom's
macroglobulinemia
| WebMagic
- Hodgkins / NHL
See also Patient Stories |
Abbreviations used on support lists
PAL's new online community venue
How do I
join a list?
For Yahoogroups lists, you subscribe by clicking a link for the group
you wish to join. For other lists, we provide easy-to-follow
instructions.
How does a list work?
After subscribing, email that you send to the list address is
distributed to all in the list. If you reply to a list message, all in
the list will receive your reply. Therefore, subscribing lets you communicate
instantly with others who are fighting lymphoma - often many hundreds of
individuals.
Which lists should I
join? Review the descriptions below.
Some lists are information oriented; other lists encourage informal talk. Some lists focus on subtypes of lymphoma or are treatment-specific, while others are more
inclusive.
Browse the list’s web site and view past messages to get an idea of the ‘flavor’ of the list. Try a list for a while. You can unsubscribe from many lists quickly from here, with one mouse click. For Yahoogroups lists, you can also change the message profile from here with one
click.
How to avoid
information overload? With Yahoogroups you can set the Message profile to Web/Nomail to turn
off receiving messages by email. Then, when the
need arises, you can browse or search for
messages on the Website, instead of receiving email. Another approach
is to select Digest mode. This to
receive all the messages sent to the list in a day as one email.
Below, for Yahoogroups lists, we have links you can click to change the
message profile in one step.
Some advantages
of online support: You are not on the spot to actively participate
... you can
"lurk" - read messages
without replying. You can use an alias
to keep your identity private when you do post messages. You can ask questions
of hundreds of patients and caregivers by sending just one email. You
can provide encouragement, guidance,
or share experiences and resources
to help others in need. You can also learn from what others share.
See comment in green from a list member below.
Can I add a
support group to this page? Yes. Please notify us
by clicking here if you have a support group to
add to this list, or if you wish to change the Membership information about a
group you manage. Use the information below as a guide.
- Karl Schwartz
Moderator, NHL-info, NHL-follic and NHL-MALT support lists
Nancy writes: I just wanted to say thank you to everyone in this group! Since joining the group no to long ago I have become more
comfortable knowing that there are others out here with malt lymphoma. For a long while I really felt quite alone.
I can't tell you how much easier it is being able to read everything from everyone and learn so much more. I am
finished with the radiation treatments but still undergoing some testing, and just knowing that this group of great
people are here, I realize that no matter what I can make it through all this. The support felt from this group is
awesome, stay together and keep writing, I always read everything written by all of you.
~ Nancy (NHL-MALT)
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