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Guidelines at Diagnosis | About Clinical Trials |
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evidence-based support and information |
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Complaints About Doctors?We believe that the overwhelming majority of physicians and their staff are dedicated to meeting the needs of their patients. However, there are sometimes unfortunate exceptions.
Finding a Competent Surgeon / HospitalSignals of ExcellenceAdapted from Medical Matters Consumer Reports (subscription required)
Questions for the surgeon:
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NEW and important: Trial Talk - 100 experts to consult for second opinions and to inquire about clinical trials! |
NOTE: Because we cannot verify all the recommendation received, please consider this list to be only a starting point in your search.
Please send your referral in
this format:
STATE, CITY,
CENTER, ADDRESS
NAME, Phone, Web/Email
PI means that this physician also conducts lymphoma-specific clinical research.
The information presented on Lymphomation.org is not intended to be a substitute for professional medical advice or to replace your relationship with a physician. For all medical concerns, you should always consult your doctor. Patients Against Lymphoma, Copyright © 2004,
All Rights Reserved.
LIMITATIONS:
The list is based on submission by patients, and therefore excellent oncologists may not be included simply because patients haven't yet taken the time to tell us.
Submissions are not science-based - for example, are subject to patient bias, such as chance interpersonal chemistry.
See sidebar for our recommended criteria.
KEYS:
PI = primary investigator - does clinical research.
ES = Expert Status (See also Experts)
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CT, New Haven
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CT, The Whittingham Cancer Center
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MA, Boston
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MA, BostonBeth Israel Deaconess Medical Center, 617-667-5864 Robin M. Joyce, MD (PI/ES), 617-667-9920 Hematologic Malignancy and BMT Program |
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DC, Washington
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MD, Bethesda
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ME, Scarborough,
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NJ, Forked River
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NJ, New Brunswick
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NJ, Morristown
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NJ, Hackensack
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NY, Buffalo
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NY, New York,
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NY, New York
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NY, New York
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NY, New York,
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NY, New York,
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NY, NY, Queens
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NY, Rochester
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NY, Staten Island
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PA, Philadelphia
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PA, Philadelphia
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PA, Philadelphia
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PA, Pittsburgh
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PA, Pittsburgh
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Return to Patient-Recommended Doctors
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CA, Duarte (near LA), City of Hope - Lymphoma Team
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CA, Campbell
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CA, La Jolla
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CA, San Francisco
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CA, Santa BarbaraCancer Center of Santa Barbara (805) 563-5800 http://www.ccsb.org
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CA, Palo Alto
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CA, Santa Monica
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CA, Whittier,
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CO, Denver
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OR, Portland,
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OR, Springfield
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TX, Dallas, Oncology/Hematology, Sammons Cancer Institute,
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TX, Houston, The University of Texas MD Anderson Cancer Center
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TX, San Antonio, TX, Hematology/Hematologic Malignancy, Cancer Care Centers of South Texas, (210) 595-5300.
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UT, Methodist Richardson Cancer Center
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WA
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WA
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WI, MADISON, WI 53705
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WI
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FL, Ft. Lauderdale
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FL, Fort Walton Beach
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FL, Tampa
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FL, St. Petersburg, FL 33705
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MS, Jackson
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NC, Asheville
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NC, Durham
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SC, Spartanburg
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SC, Charleston
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IA, Iowa City
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IL, Chicago, Northwestern University,
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IL, Chicago
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IL, Chicago
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IL, Chicago
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IL, Chicago
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IN, South Bend
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IN, Indianapolis
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IN, Indianapolis
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MI, Ann Arbor
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MN, Minneapolis
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MN, Minneapolis
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MN, Rochester
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MN, Rochester
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MN, Rochester
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MN, Rochester
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MO, Joplin
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MO, St Louis
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NE, Omaha
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OH, Cleveland NEW
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OH, Columbus
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OH, Columbus
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OH, Canton
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OK, Tulsa, |
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Canada, Vancouver
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Canada, Montreal, Quebec,
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Canada
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Canada
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University Hospital of Cologne |
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The Royal Marsden
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Nottingham UK, Consultant Haematologist,
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Barts Cancer Institute
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University College London Hospital
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Spain, Pamplona
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Related Topics
Getting a Second Pathology Evaluation
An accurate diagnosis is a key to receiving the the best treatment. We have received a good number of reports from patients on the support lists of incorrect or missed diagnosis. Unfortunately, it is more common than we would like to think.
Please know that your pathologist can send the slides out to the center you indicate for a nominal fee. Insurance reimbursement is also likely. No matter. If you can find a way to have this done, we think you ought to.
Here's one report on this question from a fairly large study: Comparison of Referring and Final Pathology for Patients With NHL in the National Comprehensive Cancer Network
From this report see table showing findings by subtype:
Referral and Final Pathologic Diagnoses for Patients With Non-Hodgkin's Lymphoma (n = 731)A survivor writes: "I want people to be aware of the importance of a second opinion. For almost eight years I have been treated for Mantle cell lymphoma. I was sent to a radiologist for evaluation of treatment and he questioned my diagnosis as Mantle cell is very aggressive and if I have had it for 8 years and I look so healthy, he said he has treated many patients with mantle cell I did not fit the diagnosis. He had previous biopsies sent to an entirely different hospital and have been diagnosed with low grade indolent lymphoma."
DR LEONARD writes: ..." it is easy to ascertain a pathologic second opinion — it’s simply a matter of sending the slides; the patient doesn’t have to go. Generally, pathologists will discuss it with you over the phone, even if you’re at another institution. It’s not a big deal to do, and the pathology is key. I believe a pathologic second opinion is more important than another lymphoma subspecialist’s opinion. We re-evaluate a situation based on our pathologist giving us information that the primary oncologist didn’t have; therefore, I encourage patients to ascertain a pathologic second opinion. It is a relatively easy thing to do, and it gives the patients some reassurance.
I think all patients diagnosed with mantle cell lymphoma should also have a second pathology opinion. That’s a hard diagnosis to make and the implications, as far as the prognosis, are enormous. Additionally, if the disease is acting like one type of lymphoma, but the pathologist is telling you it’s another type of lymphoma, maybe that’s a red flag that you ought to have it evaluated by someone else.
Finally, gray areas exist when you see follicular and diffuse lymphomas, and you are trying to decide if transformation has occurred and whether you need to use an anthracycline — this is an area in which I would encourage a second opinion from the pathological standpoint."
Source: meettheprofessors.com
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DISCONTINUED: Armed Forces Institute of Pathology offers expert pathology consultation for both military personnel and civilian cases afip.org |
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CA - UCLA, Dr. Said healthcare.ucla.edu
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CA - Stanford University - Pathology Dept Stanford |
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MA - Dana Farber (866) 408-DFCI (3324) dana-farber |
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MD - NCI: Elaine S. Jaffe, M.D. Cancer.gov |
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NY - NY Weil Cornell Medical Center NYCornell.org |
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NY - Pre-Appointment Pathology Submissions Memorial Sloan Kettering |
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TX - MD Anderson Cancer Center - Outside consultation services MDACC |
Other Country:
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Canada, Vancouver BC Cancer Agency Randy Gascoyne, B.Sc., M.D. | Website |
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University Teaching Hospitals |
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National reputations |
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Evaluate lymphoma specimens often |
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2017: Impact of Expert Pathologic Review of Lymphoma Diagnosis:
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Fine-Needle Aspiration Cytology in the Diagnosis of Lymphoma The Next Step
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The Armed Forces Institute of Pathology (AFIP), which is the top-listed referral site for pathology second opinions on the Lymphomation list, regrettably is no more.
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Diagnosis - Annals of Oncology: Expert second-opinion pathology review of lymphoma in the era of the WHO classification
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Common misdiagnoses in lymphomas and avoidance strategies PAL parsing |
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Pathology the Gold Standard
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Pitfalls in diagnostic hematopathology - Part II full text
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Comparison of Lymphoid Neoplasm Classification:
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How Doctors Think NPR.org
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Patient-Support Tools Medscape General Medicine [TM]
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Second opinions will raise the level of the care you receive from your primary oncologist, because it set's up a kind of peer review.
Second-Opinion