Patient Stories

PATIENT STORIES

Providing hope, inspiration and sometimes invaluable lessons

Indolent Treatment Survey results:

Follicular | Marginal Zone

The survey results above are a more reliable way to see what others with indolent lymphoma have experienced.

Patient Stories

	Newly submitted stories
	Encouragement & Tips
	Treatment Experiences:

Experiences

Stem cell rescue

Radioimmunotherapy (RIT)

Personal Stories: Benefits, Limitations and Policies

In Memorial

	Jamie (1776 - webmagic)
	Lisa de Parry
	Charles Brennan
	Page Irby
	Antonio Reis
	CLL Memorial
	Remembering Mildred - mom (my hero and friend)

OTHER GROUPS

	Hodgkins Lymphoma Stories WebMagic
	WebMagic - Our Stories
	CancerGuide Stories

Shared Patient Signatures

Patients can find comfort and reasons for hope from personal stories

Click here to

To protect your privacy identifying information will be removed

While personal stories can benefit others,
there are also limitations and our related policies

Guidelines at Diagnosis | About Clinical Trials Search Site

PATIENT STORIES Providing hope, inspiration and sometimes invaluable lessons

Treatment Experiences:

Radioimmunotherapy (RIT)

In Memorial

Jamie (1776 - webmagic)

Lisa de Parry

CLL Memorial

OTHER GROUPS

Hodgkins Lymphoma Stories WebMagic

WebMagic - Our Stories

CancerGuide Stories

Newly Submitted Stories

Personal Stories and Guidance

Encouragement and Tips

Andrew:

Andy:

Andy's journal: from diagnosis to treatment

Anjou: Her doctors doubted her symptoms and missed the diagnosis of lymphoma "The mailman was right, the doctors were wrong. I was not totally crazy, I had cancer."

Betty: Indolent NHL, still untreated

Bruce: diagnosed with NHL in 1986

CT About finding, evaluating, choosing clinical trials

Daisy: Caregiver's perspective on hair loss - it isn't really a vanity issue

Dawn: �My Voice� by Dawn Eden

Diana: My experience with Chlorambucil for treating MALT

Ian: 20 year war continues ...

Gene Wilder video Story, blocked by FOX for copyright reasons ... Boo!

Group threads:

Jama:

"A Good List" - CureMagazine Providing humor, wisdom and encouragement.

In praise of an exceptional doctor and scientist - Thanks to Dr. Levy

Jama: Social Security Disability Benefits (Guidance)

Joy: Lymphedema and anti-embolism stockings

Karl:

Ken: Having this type of cancer isn't "THE END"

Ken G: I took this disease a little too lightly

Kim: I waited way too long with my pain

Linda: Story of hope and perspective

LovesToRead:

What Cancer Can't Do

My Journey with Lymphoma

Laurie: well I finished my radiation today

Lucy: Wigs - I got to the point that I hated the wig

Margaret: Neulasta Reaction: "Sometimes the older things work well too."

Mark: Chemo tricks and tips

Paul Klein:

Sands: Parasites and NHL

Sandy: On feeling Lost

Steve: "Unpanic" and find a doctor you trust (MALT)

Tarzan:

WebMagic board:

Being around kids when you receive treatment? Tips from Patients

Treatment Experiences:

A: MALT affecting eye - Treated successfully with CHOP

Allan: Transformed follicular treated with SCT including HD Bexxar - with Sep 2007 update

Andrea: Rituxan plus CHOP ... hasn't been so bad

Andy's journal: from diagnosis to treatment

Barbara: Mycosis Fungoides

Barry: Update on bladder lymphoma (Mastocytosis)

Bill: Diagnosed with significant bone involvement; treated successfully ...

BG: Remission after diagnosis with advanced indolent Lymphoma with bone and bone marrow involvement

CH: Bendamustine overcomes refractory nhl

Christopher: Battle Against Lymphoblastic Lymphoma (NHL) - caringbridge.org

Connie: MALT: Radiotherapy with Amifostine, a drug that protects healthy tissue from radiation MALT

Daughter: Chemo was effective for CNS lymphoma, but caused blood clots. Trapease started too late.

Don: CHOP + Rituxan succeeds after CVP fails to work optimally

Fran: "We saw Dr. Fenske yesterday" (fighting MCL) - www.caringbridge.org

Graham: MALT with & false positive HIV - Graham's story

Group post:

Jainine: Successful treatment using Total Lymphatic Radiotherapy for stage III follicular NHL

Judy: The doctor may be the expert on the procedure, but I am the expert on my body and my life

Karl & Joanne: Radioimmunotherapy following chemo

Matt: Waldenstrom's - great response using Fludarabine and Rituxan

Maureen: MALT affecting the eye

Michelle: One year remission so far, despite relapses and change to DLBCL

Nancy: Jeff's response to Rituxan after relapse following CHOP-R

Peter: follicular, allo SCT

Sheila: brachytherapy story

Susan: I've had a good year on Revlimid treating grade III fNHL

Sofie: spleen removal; overcoming allergic reactions to rituxan

Guidelines at Diagnosis | About Clinical Trials

Search Site

PATIENT STORIES

Providing hope, inspiration and sometimes invaluable lessons

Anjou: Her doctors doubted her symptoms and missed the diagnosis of lymphoma

"The mailman was right, the doctors were wrong. I was not totally crazy, I had cancer."

"A Good List" - CureMagazine

Providing humor, wisdom and encouragement.

Connie: MALT: Radiotherapy with Amifostine, a drug that protects healthy tissue from radiation
MALT

Disclaimer: The information on Lymphomation.org is not intended to be a substitute for
professional medical advice or to replace your relationship with a physician.
For all medical concerns, you should always consult your doctor.
Copyright � 2004, All Rights Reserved.