Greetings,
Patients Against Lymphoma is a non-profit group founded and maintained by patients and caregivers directly affected by lymphomas, a kind of blood cancer that has risen 4% annually between 1970 and 1990.
We provide direct support in online forums and evidence-based information on lymphoma and its treatments through our website lymphomation.org
We also engage the research community – providing patient perspectives on the direction of clinical research and the design of clinical trials.
One of our major goals is to help patients understand the critical role of clinical trials in making PROGRESS AGAINST LYMPHOMAS / CLL and to provide also general guidance on when we may reasonably consider clinical trials …that are a good fit for our clinical circumstances and treatment goal.
See for our ongoing related projects:
http://lymphomation.org/clinical-trials-participation.htm
Importantly, we maintain our neutrality by accepting only public support. We have chosen this path in order to provide unbiased perspectives on clinical research and investigational drug approvals … ensuring that our advocacy efforts are driven only by patient needs.
Please check back for perspectives on clinical research and other topics of importance to lymphoma survivors and caregivers.
Best wishes,
Karl
President and Co-founder of Patients Against Lymphoma