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Patients Against Lymphoma

 

Support Patient-to-Patient > Clinical Trial Survey > Purpose

Last update: 06/25/2006

 

The purpose of the Clinical Trial Survey is to answer the following basic questions:

Why is clinical trial enrollment at less than 5% when trial participation is
  essential to making progress against lymphomas?  

What factors (attitudes and circumstances) contribute to this unfortunate statistic?

Specific goals of the Clinical Trial Survey are to discover:
  1. patient interest in clinical trials, versus patient participation
    • For example, if interest is high and participation is low, it would support the 
      hypothesis that clinical trial design is the key factor to address 
      (i.e., the study failing to appeal  to patients - or their treating physicians as treatment decisions.)
  2. patient attitudes towards Clinical Trials, Second Opinions, Second Pathology Evaluations
    • correlate with clinical trial interest, and study participation
  3. % of non-specialists discussing trials with their patients
    • correlate with clinical trial participation
  4. % of patients who see specialists
    • correlate with clinical trial interest, and participation
  5. % of patients who seek clinical trials on their own
    • correlate with clinical status
    • correlate with clinical trial participation
  6. identify the reasons patients decline to participate in clinical trials they conside
  7. identify how patients learn about clinical trial
 
We will prepare printed surveys and distribute to radiology centers, and support groups, 
such as Guilda's club 
 
 
Disclaimer:  The information on Lymphomation.org is not intended to be a substitute for 
professional medical advice or to replace your relationship with a physician.
For all medical concerns,  you should always consult your doctor. 
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