I think of myself as
having been W&W for over 20 years... that is how long I had an
enlarged spleen and low platelet count before my lung involvement
came to light by accident... I had complications from my
hysterectomy ... and when looking for the cause of my intestine
problems... saw the strange "pneumonia ... which turned out of be
I had actually not followed up with it because I was feeling fine.
It was a couple of years later that did I start having discomfort
and begin treatment.
I had Rituxan which resulted in a partial response. But even the
"easy" treatments are not without risk. I had several cuts that got
infected and needed antibiotics as a result of my depressed immune
system. On the other hand, my spleen was normal size for the first
time and I am no longer covered with bruises!
One of the good things about indolent MALT is that even when you are
finding treatment... you can take your time and make an informed
I know it is frustrating not to have answers... hang in there. There