It has been more than 2 1/2 years since I was diagnosed with marginal zone B cell lymphoma via a lump in my right breast (I was 45 yrs old at that time). Initial unilateral bone marrow biopsy revealed lymphoid aggregates. Doc at Univ. of Pennsylvania did not believe this indicated bone marrow involvement. I thought the lump would be removed, I'd have radiation, and put it all behind me. Unfortunately (or fortunately depending on how you look at it) the second opinion doc did not agree and I had bilateral bone marrow biopsy to confirm/deny his opinion. The pathologist found and concluded bone marrow involvement and I've been on W & W since. Due to the "controversy," I sought a third opinion from Sloan Kettering. The SK doctor agreed with Stave IV dx and w&w. I was and continue to be asymptomatic.
This group was my lifeline during the first six months giving me the support and guidance that neither my friends or family could. I corresponded and talked with two very supportive women who shared a nearly identical diagnosis - ellens and jcvining. I owe those two ladies a very big debt.
In October 2000 I attended the Patient Forum in Brooklyn, New York. The conference helped me to believe that I had many healthy years ahead of me. I met people who had been diagnosed nine, twelve, and eighteen years earlier who were living very productive happy lives. I also learned about current treatments and clinical studies of cocktail combo drugs. When the time for treatment comes I believe I'll be better prepared to make informed decisions about the course to take.
Thank you Carol and everyone for sharing your stories, hope, insights and support.
Very sincerely,
Lisa Clanet
|