Survivor who is a Levy Lymphomaniac (graduate vaccine patient). Her time
is spent befriending newly diagnosed lymphoma patients, doing research
for them, and public speaking regarding her experiences as a cancer
patient. She credits her remission to Dr. Ron Levy’s human specific,
idiotype, antibody vaccine from 1995, a supporting family, and her
“wicked” sense of humor.
Jama was diagnosed with B Cell, Follicular, Large & Small Cleaved,
Non-Hodgkin’s Lymphoma, Stage III-B in August 1994 at age 46. She had a
significant abdominal mass that had compromised her heart. She took CVP
chemotherapy alternating with Fludarabine for 8 courses. The original
mass was reduced by 80%. With this goal met, she subsequently joined
Dr. Levy’s vaccine program at Stanford University.
Jama was diagnosed by accident when she sustained a serious fall at work
and had a MRI to determine back injury. She had seen 6 different
doctors over a 12-month period of time at Sansum Medical Clinic in Santa
Barbara, CA before the fall because she experienced night sweats and a
low-grade fever; however, those physicians failed to diagnose her
lymphoma. She brought her own lawsuit against Sansum without an
attorney, as no lawyer would take the case, for Failure to Diagnose
Cancer that was settled out of court to her satisfaction. A
condition of that settlement was mandatory physician education in
diagnosing lymphoma and other cancers.
“I have lived on a mountain top in Sardinia, Italy with 40 men, worked
through college as a backup singer in Nashville’s country music scene,
been a paralegal, executive secretary for a bank, a flooring store
controller, a general contractor, and a cattle rancher in Texas. I am
most proud to have been the mother of Brett and Laren Beasley and wife
to Larry for 48 years. Nothing prepared me for the adventure and
challenges that having lymphoma brought into our lives (or maybe it
was all basic training for Lymphoma 101). And yes, JAMA is my real
name!” (Journal of the American Medical Association)
Jama and Larry Beasley live on Chincoteague Island, Virginia and
will continue to help those patients and their families that cross her
Schwartz is a caregiver, patient advocate, and the founding member of
Patients Against Lymphoma. His spouse, Joanne, is a nine year survivor of
Karl serves as
a patient consultant to the FDA Oncologic Drug Advisory Committee
(ODAC), and participated in the Leukemia, Lymphoma and Myeloma Progress Review Group.
He moderates three online support groups, and produces most of the
content of the Lymphomation.org website.
See also CV
passed away, but lives in our memory and hearts.
is a retired CPA who lost his spouse, Penny, to NHL He has generously
donated his skills, which include corporate and accounting experience
to helping Patients Against Lymphoma manage and set up its accounting