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Patients Against Lymphoma

 

Advocacy > Need for statistics on subtypes of lymphoma

Last update: 10/12/2012

The need for subtype-specific statistics on lymphomas.

Dear Sir or Madam:

The SEER website has improved, but the utility of the statistics for non-Hodgkin's lymphomas continue to suffer because subtypes of the disease are not yet provided.

For comparison purposes SEER provides the following useful categories for Leukemias:
 
        Lymphocytic  Leukemia
            Acute Lymphocytic  Leukemia
            Chronic Lymphocytic  Leukemia
        Myeloid and Monocytic  Leukemia
            Acute Myeloid  Leukemia
            Chronic Myeloid  Leukemia

for Non-Hodgkin's Lymphoma

        none

As you know, incidence, prevalence and survival vary significantly based on subtypes of lymphoma. Trends in survival also vary significantly based on the clinical tempo of the disease - aggressive versus indolent, as does, presumably, conditional survival.  

We do not know yet what NHL entities are available to SEER (in the raw data sets), but we ask that you provide subtype specific information on NHL along these lines as soon as possible:

Blood cancers
 
    Lymphomas
        Non-Hodgkin's lymphoma
            Aggressive
               DLBCL
               T-cell
               MCL
               Other (Aggressive - defined entities)
           Indolent
               Follicular
                MALT
                T-cell 
                Other (Indolent - defined entities)  
 
        Hodgkin's Lymphoma
 

   Leukemias:

        Lymphocytic  Leukemia
            Acute Lymphocytic  Leukemia
            Chronic Lymphocytic  Leukemia
        Myeloid and Monocytic  Leukemia
            Acute Myeloid  Leukemia
            Chronic Myeloid  Leukemia

Note: As you know, CLL is b-lymphocyte cancer. Presumably, it's classified as a leukemia based on presentation and other factors, but it could easily be considered a lymphoma.

Sincerely, 

 

Karl Schwartz
Patients Against Lymphoma

 

 
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